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Information on this website is
not to be used as medical advice
Permission
has been given to print the
following success stores.
These stories have been written
by many parents who wish to
share their story about the
gluten and casein free diet and
how it has improved the life of
their child. Our gratitude is
extended to everyone involved
with The GFCF Diet Support
Group. They have taken the
time and made the effort which
has provided a dedicated
and caring support system for
every parent who wishes to use
Dietary Intervention.
Please send:
1. Child's name/and your
name
2. Child's age now
3. How long has your child
been on the diet?
4. Write what the gfcf
diet has done for your child.
Send to: Judy@gfcfdiet.com
Child's
name: Izabel
Child's currant age: 3 years old
By mother
Hello my name is April Palmer
and my daughter Izabel is 3
years old. Izabel is still in
the process of getting a
diagnosis, but I know she
definitely has a PDD. She
wouldn't talk to us , she had
poor eye contact, walks in
circles on her toes, lines up
toys, etc.....
I read about the diet, and
decided to try it. I felt so
helpless, and at least this was
something I could do. Izabel
always spaced out when she ate,
and all she would eat was dairy
and wheat! Well in one
week on the diet the eye
contact improved, she seemed to
understand us more, and TODAY
she is talking!!!! I have spent
so many hours trying to get her
to say a simple word like mama,
and she would look at me
blankly, and eventually throw a
fit if I kept pushing. Now she
is saying every word I ask her
to say!!! Mama, Dada, Tigger,
book, EVERY WORD!!!! I am
so excited! In one week
she has changed so much it has
to be the diet. I can't
wait to see how she is in a few
months!!
If any parent out there is
hesitant to try this diet, I beg
you to try, you have nothing to
lose and and everything to gain.
I am so thankful to all the
parents that tried this diet and
shared their stories, this site
gave me the initiative to try
it, Thank you so much for
putting a great resource out
there, I cannot find words to
express my gratitude.!!!
Sincerely and thankfully,
April Palmer

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Child's
name: Patrick
Child's current age: 3
years 6 months
Been on diet: 3 months
By mom: Amy
I was frustrated early on after
the diagnosis because so much
that I read indicated that a
diagnosis after age 3 meant the
critical time for help/recovery
had passed. Patrick's
second opinion indicated
apserger's, rather than the
initial diagnosis of mild-high
functioning autism. We
started the diet 13 days after
the first diagnosis and noticed
casein withdrawal in 24 hours;
increased eye-contact and onset
of imaginary play within 4 days.
Gluten withdrawal was full of
grouchiness approximately a
month later.
Three months ago, Patrick spoke
primarily in 3 or less word
combinations and had little to
no pronoun use. I'm happy
to report that he is more often
than not resorting to words to
completely improve his use of
pragmatics, rather than tantrum
or just get frustrated. He
totally uses pronouns and his
word combinations are typically
7 words or more, and we are
seeing the beginnings of
conversational speech.
Previously he would just state
single words. He tantrums
much less often, and when he
does, it seems shorter-lived.
He reserves these for serious
situations, not just any old
thing like before. this is
all diet alone, and lots of work
from mom and dad, but mostly
Patrick.
My best description of what has
happened is that a fog has been
lifted, the static or white
noise that seemed to be
interfering with his progress is
very nearly gone , and he is
much more capable of learning.
We'll be sticking with this, as
there is so much more to learn.

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Child:
Paul
From: Joan
(mother)
Age: 5
yrs, 10 months
How long on diet? 2 years
- 10 months
Paul was a happy, well
developing little boy until
about the age of 2 - when his
speech delayed and he developed
a lot of self-stimulation. After
hearing tests, and speech
therapy analysis - he was
entered into the public school
system special education program
for pre-schoolers at age 3.
The teachers recommended that he
be tested for autism. At
the age of 3 1/2 years - Paul
was diagnosed as PDD-NOS - and
continued on with his special
education pre-school and private
speech therapy. His
teachers recommended that Paul
attend the year-round (summer
school) program to make sure
that his routines and schedules
were not disrupted during the
summer break.
In January, 2000 - I saw the
article in Parents Magazine by
Karyn Seroussi. My husband
and I decided to try the diet,
the day after Paul's 4th
birthday (1/29)- one last
"hurrah" with birthday
cake and milk. At this
time Paul was only trained for
urinating but not for bowel
movements. We went
immediately onto the GFCF diet.
We could see immediate results
in the dry skin and itchy
patches that disappeared from
Paul's skin and his behavior
improved as well! He
reacted better in the classroom
and in March (1 1/2 months after
we started the diet) - his
pre-school teachers told us that
his improvement was so dramatic
that they didn't feel he needed
to go to the summer school
session. His private
speech therapist also noticed a
dramatic improvement in his
behavior as well as in his
receptive speech.....and asked
me more about the diet - so she
could recommend it to other
parents. His Sunday School
teacher told us that "Paul
is a different boy" in
class.
Four months after starting the
diet - Paul trained himself for
bowel movements ! Hurray!
He still didn't understand how
to peddle a tricycle and liked
his videos instead of playing
with a lot of neighborhood
friends.
We moved from Texas to
California that summer. I
found a doctor in CA who
believed in this diet (our Texas
pediatrician didn't support it
or believe in further testing
for fungus or yeast build-up in
the intestines). This
doctor immediately tested Paul
for fungal build up and placed
him on and anti-fungal treatment
in October 2000. Again -
we saw more DRAMATIC
improvements. More
socialization, greater speech
development and less self-stimming.
He continued on with his special
education pre-school through the
public school system in
California - but at an annual
IEP - the educators said that
Paul no longer qualified under
the Autism Spectrum - but rather
for speech services only!
The teachers and therapists who
had never seen Paul at age 3
were in disbelief that he was
identified as PDD-NOS!
The diet continues in our lives,
and I can tell when
contamination occurs......loose
stools, itchy skin, and behavior
problems. It is hard - but
it has become a way of our
lives, and it has made such a
difference in Paul's life and
his future!
Today - we had Paul's
parent-teacher conference with
his Kindergarten teacher.
He is in a regular education
classroom (with no aides) and is
already reading at a high
level for his class.
Again, his teacher said she
"could not fathom"
Paul in a special education
class. He is a
"typical" little boy -
learning, and playing in
Kindergarten with other
"typical" little kids.
Now he would rather play with
friends instead of watching
videos, and he plays on a soccer
team, takes gymnastics classes
and last week he learned how to
ride his bicycle without
training wheels. We now
see the normal milestones
everyday that other parents take
for granted with normal
developing children. My
husband and I ARE convinced that
this diet has changed Paul's
life. It has given Paul
the opportunities to lead a
normal life and has given our
family a semblance of normalcy
that wasn't there before.
TRY THIS DIET OR KEEP STICKING
WITH IT!
I thank God every day that I
found that article......it has
changed our lives and I have
that magazine in a prominently
stored place in our home.
Joan Jensen

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Lewis
Age 3.2 yrs.
by Sophi (mother)
How
long on the diet: 8 months
What the diet has done for
Lewis:
Lewis was diagnosed when he was
2.6. As a baby he was always
happy and smiley. He developed
normally till he was 18 months -
then, after the MMR, lost all
his language, his eye contact,
his enthusiasm. He developed
eczema and had constant diarrhea
and his sleep got worse and
worse. January 2001 was his all
time low. He did not react at
all to anybody and seemed
depressed and unhappy in his
closed of world. He didn't
understand any language at all.
I felt as if he had died.
I had heard about the diet, but
it was not until I found this
website that I decided to give
it a try. We spend a few weeks
slowly removing gluten and
casein from the diet. After 2
days he had his first formed
bowel movement in a year! He
immediately woke up to
environmental sounds - noticed a
fly flying past, heard the door
slam etc. He started smiling at
us again and he slept through
the night.
After a week some autistic
symptoms got worse. He flapped
his hands and walked on tiptoes
but that disappeared again. We
have been very lucky to find a
doctor who is specialized in the
diet. He helps us with any tests
we need done and advices us to
any supplement to give to Lewis.
After we started Lewis on
EnzymAid (Kirkman Labs) Lewis
had terrible yeasty diarrhea but
then got constantly better. He
rarely has a bad day. The diet
did not cure Lewis overnight but
I feel it made him wake up and
become ready to learn. We
now run an intensive ABA program
for Lewis and he is catching up
in a lot of areas. His receptive
language is coming along and he
is slowly starting to speak -
his eye contact is improving
every day.
And he is so happy and cheerful
and so alert and interested in
the world around him. He loves
us and he has started initiating
games with us and is showing an
interest in other people and
children. I know that the
therapy is vital but I could not
imagine doing it without doing
the diet. I can now see a future
for my lovely little boy - he is
coming back!
Darren
Age 3.6 yrs
by Stephanie (mother)
My name is Stephanie, and our
son Darren age 3 and a half has
been on the gfcf diet for 3
months, secondary to a diagnosis
of autism. He is doing
really well. He doesn't
seem to miss the "old
foods" but has
adjusted to the "new
foods". He has not
really started broadening his
overall choices yet and is still
"picky", but
we're hopeful.
He just started a home ABA
program of 30hrs. per week.
Between the diet and ABA,
we've seen a huge difference in
his behavior. He's much
more easily contented, happier,
and more verbal with greater
articulation of words. We're
definitely going to keep going
on the diet for now.

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Child's Name:
Kyle
Age: 4
Mom: K
On Diet: 2 years
I am amazed
that there are so many others
out there with identical
experiences to my own. My
son began showing signs
of autism with repetitive
head banging, temper tantrums
and delayed speech. Kyle was
just over one year old and I
had gone back to school in the
education program. He was up
all night screaming and when
we tried to comfort him he
would arch his back and
struggle to get away. My
husband used to call him
"psycho child". It
was heart breaking because he
was such a sweet baby when he
was breast fed. The doctors
had no idea what was causing
his head banging at so young
an age, they wanted to start
testing him for
autism. By chance I
mentioned that he had diarrhea
and my family doctor
recommended that I stop giving
him milk because some babies
loose the ability to digest
milk temporarily after a
stomach flu. He immediately
slept through the night after
one day without milk. I
thought he may be lactose
intolerant and immediately
cancelled all the tests they
were going to put him through
(head scans etc..). I
requested an appointment with
an allergy specialist because
we were still having problems
with behavior and I suspected
dietary causes since the
elimination of milk had made
such a difference. Of course
at age 1 1/2 years old the
allergist could not say
conclusively what foods were
bothering him but he gave me
an excellent elimination diet
to follow. I discovered on my
own that he could tolerate
zero milk or soy products. By
this time I was done my
schooling and I decided to
stay home full time to cook
his meals and monitor his
diet. His head banging
had become a behavioral habit
and was eventually eliminated
by working with an excellent
child psychologist.
Kyle is now four years old and
I would say that he is a
typical little boy. He has
been on a strict diet since
the age of two. After
seeing one family doctor, a pediatrician,
and an allergist not one of
them mentioned this
diet. If only someone
could have helped me when I
felt so alone with this
problem. My stubborn insistence
that it was diet related
is the only thing that has
saved my son from permanent
damage. It took me a year of
trial and error with many
regressions as I tried to
figure out which foods caused
reactions in my son. Then I
had to convince everyone
around me that I was right and
force them to follow my
strict dietary rules.
I now see that I am not
alone in my experiences and I
am sitting here crying with
relief. If you are struggling
with these types of issues
with your child, give this
diet a try. It is completely
non-invasive (unlike doctors
tests) and the results can be
immediate. The earlier you try
it the better off your child
will be because they need time
to catch up with the developmental
tasks they have missed.
Owen
Age 4.0 yrs.
by Sharon (mother)
We recently passed the 6
month mark on the diet so I
thought a progress report might
help others just starting out.
Similar posts certainly kept me
going in the early days!
So here goes
Owen went gf cf (both at
the same time) at the beginning
of March when he was 3 1/2.
We were becoming concerned about
Owen's behavior at playgroup -
and in general - and his lack of
understandable speech.
Then I stumbled across a talk
given by Mike Tettenborn
about the benefits of the diet
in ASD and I realized he could
be describing my son. At
this time someone told me about
AiA so I spoke to Marilyn Le
Breton, got hold of her newly
published book, and joined this
list (GFCFKidsUK).
Before starting the diet, we did
a Sunderland urine test which
showed a positive IAG peak but
no peptides. The first 3
days on the diet were hell.
Terrible tantrums. These
were followed by an explosion of
drawing. People with arms,
legs and smiley faces burst
forth. Owen had only ever
produced one face before - when
he was about 2 - but hadn't
drawn anything else apart from
scribbles since. The other
almost immediate change we
noticed was an improved sleep
pattern. A child who was
itchy (eczema), restless and
waking every night in the small
hours for 2-21/2 hrs, suddenly
slept through the night.
The next 2 or 3 weeks were
tough - and are now a bit of a
blur - as Owen went through
withdrawal. But after a
few weeks we were rewarded as
his speech started to improve.
He was back with us.
At around 3 months into the diet
we had a set-back, which is
apparently quite common.
Owen had several weeks of
diarrhea alternating with
"peanut butter" BM's
- pale, lumpy, soft and smelly -
and progress slowed.
Candida was my top suspect but
as Owen had no other yeast
related issues we decided to
wait and see before acting.
Next, he was suddenly covered in
bad eczema. Once that
went, the BM's improved and Owen
started to sleep better again.
He also toilet trained himself
during this phase (rather messy,
and best forgotten.....but now
quite a relief!)
Improvements keep coming.
We have seen, and are still
seeing, improvements in
awareness and eye contact (now
not really issues), speech and
language development, calmness,
sociability (really wants to be
with people), sleep patterns and
toileting. He's now very
open to learning in a way I
could not have envisioned
pre-diet. And his eczema
has gone. He still has
very dry skin from time to time,
which we think is related to
essential fatty acid deficiency.
And there's the periodic return
of the mushy BM's.....
In September Owen had his first
gluten infringement. Red
ear, red cheek immediately.
Later on he became silly and
hyperactive, and then spacey. We
had about 10 days of markedly
reduced eye contact,
hyperactivity, eczema and
totally disrupted sleep.
Then he had a long, long, long
calm sleep and woke seeming a
bit better. It took 3-4
weeks to get over this
infringement. We didn't
plan this accident but it's
turned out to be quite helpful -
there's no room for any
doubt that Owen needs to avoid
gluten
That's where we've got to so
far. I'm amazed with
Owen's progress and feel
optimistic we'll see even more
improvement by implementing
other interventions in the
future, such as low sugar/nystatin,
and the enzymes. But the
gf cf diet is clearly the
bedrock of our success.
Sharon (in the UK)

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Dana's
Son
Age 12 yrs. old
Successful GFCF for 8 years!
Just
found this site for the first
time, and wanted to offer some
long-term encouragement for all
of you who are just starting out
or who have young children on
the diet. My son is now 12 years
old. We first started him on a
gf-cf diet 8 years ago, after
about a year of dietary
trial-and-error. Back then,
people were just starting to
make the connection between diet
and autism, and I didn't
actually read anything
supporting what we'd done until
we'd been on the diet for about
a year! So we were lucky to have
stumbled upon it, to have found
out for ourselves that it worked
without knowing why. The diet is
hard, no doubt about it. But we
were scrupulous once we had it
all figured out -- and for my
son, it's more than just gluten
and casein, so we were also
controlling chemical, pollen,
and dust exposures, as well as
other food allergies. We altered
our family lifestyle
significantly to give him every
chance we could. We ALL went on
the diet together (well, at
home, at least; can't say my
husband stuck to it at work!),
and I think we all probably saw
benefits.
Here's the hopeful part: we saw
dramatic improvement in the
Asperger's symptoms right away,
like many of you have reported,
and then over the years we've
seen more subtle improvements.
As my son grew older, and,
gained control over his emotions
and his behavior, we found that
he could tolerate the occasional
detour around the diet. I firmly
believe that the diet/chemical
controls we instituted gave him
a chance to develop his own
behavioral controls, gave him a
bit of space to learn and
practice. I know that without
the diet, his whole existence
was centered on fighting fears
and confusion. Those days,
thankfully, are behind him.
We're still careful about
chemical additives and
preservatives (it's hard to give
in to those once you've accepted
that substances like food dyes
are BAD for you, period), but
I've found that he can tolerate
small amounts of gluten and
casein on a rotational basis.
During peak allergy season we
tend to veer closer to a gf-cf
diet again, but have learned
that after 8 years of diet and
nutritional therapy, he seems to
have healed, or adapted, or
whatever. It's just not the big
life-or-death struggle for him
that it used to be.
I don't think he'll ever be able
to completely ignore his diet.
But NOBODY would label him
autistic these days. He's a
happy, well-adjusted, bright,
loving, funny kid. He'd like to
eat the junk food that he sees
in commercials, but recognizes
now that feeling bad isn't worth
it -- most of the time. So I'm
hopeful that the responsibility
for his eating habits is
starting to shift from my
shoulders to his. Which should
mean that as far as the autism
is concerned, he has a very good
chance to live happily ever
after.
May you all be so blessed.
Dana

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Kenny
Age 4.10 years
Sent by mother
Message to the
Comment Board,
The Gluten Free/Casein Free Diet
has been such a disciplinary
journey for my family and my 4
years and 10month old son. My
mother always believed that was
as important to look at a
child's diet first, when looking
at behavior modifications,
disorders, or things that may
seem normal to us now, such as
ADD or PDD or ADHD, or something
as simply as the "lack of
attentiveness". My son is
on a pretty strict Gluten/Casein
Free diet and as a
Mother/Administrator in the
educational world, we have found
wonders!!!!! Yes, I must say
that Mother knows best, because
mine did in the case of my son's
development and other children
within the school.
He has been on the diet as clean
as possible, and research can
provide, for one year and about
three months, to great success.
He now interacts with his peers,
engages attentively in eye
contact and can follow
predictable events as well as
use language in a way the meets
his needs beyond a 3 sentence
request. Beyond that, my family
has also fought for my sons
educational services from our
Public School District with a
vengeance. It has all worked out
and his skills have come leaps
and bounds since the diet.
Every parent should try It. It
Does Work, if YOU the parent are
willing to work. My son is
catching up in so many places
socially, cognitively, verbally,
interpersonally as far as
awareness and far most
validating with our relationship
and how it has changed, to where
he is able to now reciprocate
and converse with me...his
mother. Never mind the
typeoooo's. You to will realize
that it is such an exciting
transformation to type about,
that you to, will make these
mistakes and it doesn't matter,
because your child is
progressing and it is worth
sharing.

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Austin
Age 5 yrs.
by Linda Woods (mother)
Hi All -
I should have written this a
long time ago to give other
parents hope. But better late
than never. First let me say in
no uncertain terms, THE DIET is
the #1 intervention to have
helped my son.
Austin developed perfectly until
he was about 2 years old. He was
barely speaking and was becoming
obsessive even though he was
very loving and affectionate. He
was also consuming an alarming
amount of milk - practically the
only food he ate. (Some 10-14
bottles a day and yet he
couldn't even say
"milk" or
"bottle"!)
I finally got a doctor to admit
he was delayed and he was
assessed at age 3 with ASD in
May of 1999. (Autism Spectrum
Disorder). I was not only
shocked by the diagnosis, I was
more shocked by the doctors
remarks. "There's very
little we know about it and very
little we can do. Here's some
resources you may want to look
at, but he will never be
OK." Well, there was just
no way I was going to believe
that or accept it.
I am very internet savvy and in
in no time I had found this
website, Lisa Lewis' book and a
few other encouraging things
about the diet. Since no doctors
had any other good ideas, I
thought I'd give it a try. In no
time, his tantrums were better.
Soon, he was speaking more
words, and learning all sorts of
tasks with amazing ease. All his
teachers adored him, and with
speech therapy and a good small
individualized preschool he was
making great progress.
In Sept of 2000, (he was 4.1
months) he was assessed by
speech teacher using the 1 word
receptive/cognitive test. He
tested at age 3.11. Wow! So
close to "normal" for
his age! But get this
people.....9 months later, this
past June 2001, when he was 4.10
- he was tested again. He was
tested again, same test. He
tested at SIX YEARS OLD!! He
gained 25 months in 9 months
time!!
Anyway, the last thing I want to
report is that Austin started
Kindergarten 3 weeks ago. He is
fully included in a regular
Kindergarten where he has an
aide. However, all reports from
regular teacher, to special ed
teacher, to aides, to speech
therapists say that Austin is
virtually undistinguishable from
other 5 year olds!! He is
talking, participating, playing,
learning, singing, doing crafts
and reading!!! It is a miracle.
So, he has been on the diet for
2 years now - and he is SO
wonderful! I am not only
hopeful, but certain, that in a
few years, my son will not be
recognized AT ALL for being ASD.
I'm sure of it. :)
Now we're patients of the
Pfeiffer Treatment Center, http://www.hriptc.org/
and about to embark on a new and
stringent regime of supplements
which should correct other
biological deficiencies like
lack of B6 & Zinc and other
malabsorption problems. Their
research is VERY promising.
Check it out and I'll get back
to you all.
If you haven't started the diet
yet. DO IT NOW. Do not wait
another day. Your child's life
depends on it! What have
you got to lose?

Ashley
Welsheimer
Age 22 months
Mom: Laura Welsheimer
Only
4 Days!! Amazing (Please
read above note.)
You
all know as a mom the ends of
the earth you would do for
your child. You see your
child as this wonderful sweet
blessing that God has entrusted
you to take care of and love.
But as a Mom you know when
something just isn't right or
as would prefer to say
"typical" for
your child and their behavior.
After all, who is to say what
normal really is.
Ashley
is borderline autistic.
I am mother of 2 beautiful
children. I went to
college for Early Child
Development. I am like
all of you that have taken the
time to research and learn
ways you can help your little
baby or child. First,
let me say you are already
helping, your reading this
website and looking for ways
to help your little one.
You should be proud of
yourself for that. You
are doing what you can so far
to help them.
Ashley
had little or no eye contact,
she played with her toys but
mostly to line them up, group
them, organize them, stack
them, etc. She would open
our refrigerator and line up
the dressings one by one, she
would line up her little
people, spoons, crayons,
puzzle pieces, balls.
You name it, if it came in a
category it would be standing
at attention somewhere in our
home. LOL Very
cute actually to watch how her
little mind is working but
very autistic like. She
didn't want me very often for
hugs, she didn't imitate very
often at all.
I
reviewed Ashley's past and
realized she did not have any
dairy till about the time when
some of her only first words,
"doll and baby"
disappeared. Ashley was
on allimentrum formula because
she had gastric reflux as a
baby. Her only words
disappeared for 9 months.
She works with a
wonderful speech therapist,
Nancy and early intervention.
I
decided why not try the diet.
You NEVER Know! I knew
from what I read that it would
not hurt her so what do we
have to lose. Yes, it
takes patience, CONSISTENCY
and most of the most important
ingredient LOVE!
Just Love and that is what
guided me. I decided to
just try a casein free diet
first. We have only been
doing it for 4 Days, yes four
days! My heart is
Melting, my tears are real!
My baby girl is changing
before my eyes!
Literally! I have tears.
She actually looked at me in
the eyes and I could feel her
really seeing Mommy. She
is talking more, she is
imitating being a monkey and
butterfly, she is not lining
things up as much. She
lunges to me and gives me hugS!!!
WOW!!! It is a blessing
I cant even begin to describe.
My
advice is this, why not?
Talk to your doctor if you
want but the bottom line is
this as long as you make sure
they are getting the
calcium/vitamin D etc.
Then go for it. We use
Tropicana Calcium no pulp for
one of her calcium servings.
Great juice and she loves it.
You need to make sure you are
prepared for that fact that it
may not help. But you
should also be proud of
yourself for trying. You
have to try otherwise you wont
know. Its as simple as
that. My heart breaks
knowing that if I didn't go
for it or research etc, her
whole life would be different.
My love and prayers changed
her life and it could for you
as well.
Many
blessings,
Laura

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Andrew
Age 3 1/2 years (diagnosed
August 2000 at 2 1/2 yrs.)
by Cheri (mother)
Andrew appeared to be
developing wonderfully till
about the age of 12-15 months,
suddenly he lost the words he
used to say and completely
withdrew. Dealing with him
became impossible, he tantrumed
whenever we approached him,
drooled constantly and seemed
deaf. Family told us that
he was probably having a hard
time adjusting to our new house
and his new sister, born when he
was 15 months old.
Our Doctor referred Andrew to
CDS, where he was diagnosed. At
2 and 1/2 years, we were told he
was the developmental equivalent
of a seven month old. As
far as socialization goes, it
would have been easier to tame a
wild animal than to run errands
in public with Andrew, or even
have someone visit our house.
Six months of speech,
occupational and behavioral
therapy followed, with no
promising results. A
parent in our support group
mentioned the Diet, and I
remembered reading Karyn's
article. Still, it took
another 4 months before I worked
up the courage to try it, I
regret not trying it sooner.
On the first day of the diet,
Andrew put his shoes on for the
first time, we could never get
him to use his hands, other than
to devour bread, cheese, milk
(most of the things he no longer
eats). On the second day,
he looked me straight in the
eyes and smiled, as if he had
never seen my face before!
At the end of the week,
Andrew had his first solid bowel
movement in almost 2 years.
Yesterday, he took a forbidden
cracker from his sister, and had
an explosive runny bowel
movement today. An example of
how well things are going, now
that he has been GFCF for 10
weeks: we took him to a
local church fair, where he rode
on the pony; tonight he
undressed himself at bath time,
washed his hair, got out of the
tub and did pee-pee in the
potty, went to his sister's room
and kissed her goodnight, jumped
into his bed and told me about
the episode of Sesame Street he
watched today. No kidding.
Andrew still has some odd
mannerisms (he paces the room
and hums when distressed) and
his speech is probably similar
to that of an 18-month old, but
he speaks well enough that our
very chatty 2 two year old can
understand him. It gets
better everyday. And just
think, it's only been 10
weeks!!! At this rate, I think
this is going to be a wonderful
year.

Nicky's
8 months of GFCF follows
below
Nicky
Age 3.4 (diagnosed at 3.1)
On diet for 3 months
(immediately after diagnosis)
When I started the gfcf diet for
my son, I linked up to the gfcf
page and I must say that the
success stories were very
encouraging, especially at a
time when I sometimes felt there
was no HOPE for us and our son.
Now it is my turn to give back a
little of what was given to me
and say the YES, THERE IS HOPE.
Nicky was first diagnosed with
autism at 3.1 years. At that
time he said single words but
basically he was in his own
world. I couldn't take him
anywhere. The worst feeling I
had was that I could not
communicate with him. I had no
idea about what he thought,
felt, etc. The diagnosis simply
confirmed my worst fears. After
that I felt like I was walking
around with a knife in my
stomach all the time. It was the
worst I ever felt in my life.
Fortunately, this feeling did
not stop me from acting. The
very next day (after the
diagnosis) I went to the
bookstore to buy every book on
autism but I ended up buying
only two, Karen Seroussi's book
and "Saving Ryan". I
read Karen Seroussi's book that
same evening (I did not sleep
and got through the whole book
in one night) and the very next
day I took Nicky off of
everything that contained gluten
or casein! I know that the book
suggests going slowly but I
simply could not bring myself to
giving my son any food if there
was even the slightest chance
that it was contributing to his
condition. Around the same time
I started him on speech therapy
(4 hours per week) with an
AMAZING therapist and lots of
play therapy at home. The first
few weeks were terrible (for him
and us). He went through really
bad regression (more screaming,
fits, etc.) and he would not eat
anything except home made french
fries. Fortunately, my husband
was extremely supportive (he has
a background in biochemistry and
he assured me that our son would
not suffer from malnutrition
even if he ate only french fries
for a while). I supplemented
with a good multivitamin (in his
calcium fortified juice) and we
made it through the first two
weeks. He lost no weight but I
on the other hand lost at least
10 pounds. I asked for help and
got it. My husband asked his
mother to come and stay with us
for a while and she agreed and
came immediately. She supported
my decision entirely and
together we started to work on
Nicky's diet. She was very
careful about everything she
prepared and together we started
to find foods that Nicky would
agree to eat. It took time but
slowly he started to accept gfcf
alternatives (after many times
of putting something in front of
him). I have to say that he must
have refused gfcf spaghetti at
least twenty times before he
finally ate it. The same for
gfcf nuggets. Now he devours
these and many other foods as
well (gfcf sausages, muffins,
pancakes, waffles, cereal,
fruits, cookies, DariFree, etc.)
We are very fortunate that he
appears to have no allergies to
corn, soy or fruits and now he
is thriving on this diet (he
really looks healthy and I know
he is growing because he has
outgrown some of his clothes).
He is also on nutritional
supplements, (SuperNuThera) and
DMG plus extra calcium powder.
NOW FOR THE RESULTS:
Nicky is now 3.4 (on gfcf diet
for three months) and he speaks
in 3 and 4 word sentences. He
yells "It's Mama!" and
runs to me and hugs me when I
come home from work (I work
three days a week). He is very
good at expressing his needs. He
is responsive, playful,
affectionate at home with us and
his brother (5 years old). He
makes great eye contact and pays
attention during speech therapy
(and with us too) and he works
very hard at everything he does!
He makes to most amazing
drawings (detailed) and he can
discuss what he is drawing. I
can take him places. There are
still the occasional fits but
they are not nearly as often or
severe as before. It is a slow
and steady process (we don't
expect miracles to happen
overnight but they are happening
over time). He still has trouble
engaging in social interaction
with other children but this is
coming along slowly. He will be
starting a preschool in April
that will give him additional
therapy and opportunity to
interact in a group. His ATEC is
now 24 (he started at 66). We
still have a lot of work to do
but we have so much HOPE. That
"knife" in my stomach
is gone! The other day we were
looking at a video and he leaned
his head on mine. Then he turned
and looked at me (and I looked
at him) and he kissed me gently
on the cheek. He didn't have to
say anything at that moment
because I understood exactly
what he was thinking. If you are
considering this diet, try it,
you have nothing to lose. Bear
in mind that it is a lot of work
and that the progress is slow
and hopefully steady. I hope you
find this story encouraging.
Nicky's
9 months on GFCF Diet Update
Nicky is doing absolutely great.
He just turned 4 and he can
engage in short conversations
(2-3 exchanges). He speaks in
complete sentences (5-6 words)
and he was potty trained about 2
months ago (it only took a
week). He plays with his older
brother a lot (they fight a lot
too!) We continue to have hope
that our son will be able to go
to a regular kindergarten in two
years at the same school that
his older brother is attending!
He receives 2 1/2 hours of
speech therapy per week and he
attends a regular preschool 3
days per week. Nicky loves swim,
draw trains and play with Power
Rangers, dinosuars and Bionnicle,
just like any regular 4-year
old!

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Olivia
age 25 months
GFCF 50 days
by Deborah Milton, Mother
When Olivia was about 22 months
old, we learned that she had
myoclonic seizures and was
accessed as having global delays
up to a year behind. All
tests for metabolic and genetic
disorders have come back
negative. I chanced upon the
gfcfdiet website by following a
link from a developmental delay
message board. Although Olivia
has never been diagnosed as
autistic, and probably wouldn't
be, because she has incredible
interpersonal skills, I felt
that she had enough of the
symptoms of food
allergies/intolerances to give
it a try.
She's been on the diet for 50
days now and what a difference
we can see! Before the diet she
was tantruming frequently, often
whining and unhappy, somewhat
aggressive, had diarrhea a lot
(never a fully formed bm),
almost always had a diaper rash,
circles under the eyes, and only
said about 5 words. She now says
over 50 words, has fully formed
bms when we keep all offending
foods (and we've found many not
listed with the gfcf diet) out
of her system, and is calmer,
and happier. We never did give
Olivia much dairy (she got
diarrhea from cow's milk), so
that wasn't too difficult to do,
but the gluten-free part has
been a challenge, but very worth
it.
She has had some days where her
behavior has regressed terribly,
so I've gone back to look at the
list, only to discover that
there was a trace amount of
gluten in the brand of rice milk
I was using, or a bit of butter
in the cookie I'd given her that
morning. So, I would encourage
any of you parents on the fence
about starting this diet to
START TODAY! My child doesn't
even have a diagnosis and she's
responding. This diet could be
good for all sorts of disorders.
Deborah Milton

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Aaron
age 2.6 yrs.
GFCF 11 weeks
by Anne, mother
Aaron is 2 1/2 now and I have
had him on the diet for 11 weeks
now. Within the first week we
noticed better eye contact and a
calmer child. Aaron ceased to be
severely constipated to the
point of bleeding, rather he has
a regular bm each day.
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