|
Information
on this website is not to be
used as medical advice
Permission
has been given to print the
following success stores.
These stories have been written
by many parents who wish to
share their story about the
gluten and casein free diet and
how it has improved the life of
their child. Our gratitude is
extended to everyone involved
with The GFCF Diet Support
Group. They have taken the
time and made the effort which
has provided a dedicated
and caring support system for
every parent who wishes to use
Dietary Intervention.
Please send:
1. Child's name/and your
name
2. Child's age now
3. How long has your child
been on the diet?
4. Write what the gfcf
diet has done for your child.
Send to: Judy@gfcfdiet.com
Child's
name: Todd
Age: 25 months
On diet: 2 weeks
Mom's name: Dr. Rosa
Dear Judy,
Our son Todd
is 25 months old and has been
on the diet for 2 weeks.
Todd was diagnosed with PDD-NOS
a month ago. Since he
has been on the diet, he is a
completely different child.
His eye
contact has improved with
strangers, and he is
responding to his name more
often, if not always.
Just today we were in a toy
store, and he was interacting
with a complete stranger:
making eye contact, if
fleeting, and repeating words
when prompted. He has
noticed his toys for the first
time, such as his ball and
drum which have always been
available to him but of which
he took no notice before.
He is much more verbal,
babbling in ever more
complicated ways and using
some words in a limited
fashion. Three months
ago he was absolutely silent.
Today he said "bye"
to his speech therapist,
something we couldn't have
hoped for just a few weeks
ago. He no longer
engages in some of his old,
repetitive behavior.
He is more curious about his
home environment and explores
new things more than he ever
did before. Generally,
he is much more focused, much
more active, and we would say
a much happier boy.
We had hoped
that Todd would be a good
candidate for the diet.
He had self-selected almost
exclusively to dairy products.
We never noticed a particular
affinity for gluten-rich
foods, but we have removed
gluten from his diet as a
precaution. The very
first day after we eliminated
dairy, he was calmer and more
focused than he had ever been.
That night, however, the
withdrawal began - almost like
an addict going cold turkey.
He had clod sweats and a
fever. That lasted for a
day or two, and since then his
progress has been accelerating
almost every day.
It is truly
amazing what this diet has
already done for our wonderful
little boy. We thank God
every day that we came across
it. We thank you
and everyone else involved in
spreading the news of this
diet and providing the support
and help to parents. For
our part, we tell everyone
about the diet and what it has
done for Todd. We simply
cannot believe that anyone
would not at least try it.
Warmest
regards,
Dr. Rosa (mom)

Child's name: Isaac
Age: 4.8 yrs.
On diet: 3 1/2 weeks
Mom's name: Janeen
My name is Janeen , my son's
name is Isaac - he'll be 5 in
October. He was diagnosed
with high-functioning autism
March 30, 2006. I learned
about the diet at the Walk Now
marathon for autism. A man
at one of the information booths
talked to me about his son and
how the gfcf diet has helped
him. I wanted to try it
because I was intrigued at
anything that was within MY
power to help my son and not be
at the mercy of help from a
therapist (for which we are
still waiting in the eligibility
process here in the state of CA
- it's now the end of May!) so,
I was happy to try something
that I COULD DO to help.
My mother-in-law found this
website and it helped me to get
started, because it was
overwhelming. I starting
'easing him in' on the diet
about 3 1/2 weeks ago.
I'll list the symptoms he had
BEFORE the diet and the improvements
we are seeing NOW:
1. Biting his
arms when he would get upset -
we have now not seen since
starting the diet!
2. Terrified at
the very sight of dogs,
instantly scream -
he's now even (with some
coaxing) has pet a dog on the
back with much interest in the
dog and pride in himself!
3. He would
just scream as loud as he
could when he would get upset
or frustrated - now he has
expressed WITH WORDS his
feelings, like: 'don't do
that', 'I don't like that',
he's even said 'that hurts my
ears' - this is big!
4.. He
wasn't at all socially
interactive with kids that he
didn't know and very limited
interaction with kids that he
did know - he took a
child he knows by the
hand and he said, 'come with
me, let's go and pick out some
videos' PLUS, I could also
tell that it came from him and
wasn't just repeating
something that he had heard.
Also, today he asked a child
he didn't know at the library
'are you watering the plants?'
(the child was taking water
from the drinking fountain and
putting it on a nearby plant)
This is HUGE!
Yesterday...he
grabbed my hand and said 'come
with me', I said 'do you want
to show me something?'
He then said, 'yeah'....I
walked over and he pointed out
a spider web and said 'spider
web'. YAY!
5. He has
never asked a 'why' question
before - the other day he
asked after I put something in
the fridge 'why are you
putting it in the
refridgerator?' - this is so
exciting!
6. Since
we got him potty trained
(number one came easy, but
number two he had a lot of
anxiety about) he would get
constipated and hold it in -
he would scream 'I don't go
poo!' when I knew he needed
to...I would have to force him
to sit on the toilet - 2 weeks
ago (one of the first
successes) I walked down the
hall and saw him on the toilet
going number two all by
himself!!
7. He
would repeat things over and
over and over, usually things
that he heard off of videos he
watches - I haven't heard him
repeat anything in a couple of
weeks!
8. He
would say 'you (or he) want(s)
to go outside' when talking
about himself - now he has
said 'I want to go outside',
sometimes I have to remind
him, but I can tell he's
definitely understanding the
difference now.
Last Wednesday,
we decided to go out and get
some 'ice -cream'. We
thought Sherbet didn't have
any dairy and that it would be
alright....well NEVER assume
is the lesson! The very
next day, he was screaming at
everything and not expressing
himself with words, everything
was a full-blown tantrum and I
knew there had to have been
something that triggered it,
the Sherbet was the only thing
he ate that was out of the
ordinary...sure enough there
is an amount of cream put in
the Sherbet. Since him
eating the Sherbet he has yet
to go number 2 again and he
just screams about it like
before! The effects of
that Sherbet are long when
dealing with that area....we
are still seeing progression
(accept for that following
day!) he's now back on track
with everything else.
THANK YOU so
much for this website!!!!
I am so grateful that I am
aware of this and how much it
has helped my son, there is
still much progression to be
done...he has by no means
'caught-up' with the other
kids his age...but I believe
someday people will not even
notice that he's not 'normal'.
He's such a wonderful child
and teaches me so much.
I was
disappointed with the recent
article in Time Magazine about
autism (the cover story)
everything about it was great,
except NO mention of the gfcf
diet!! It has helped so
many people that it is so
wrong not to mention it.
I'm not saying that therapy
doesn't help....although I
don't know because we haven't
started it yet, but clearly I
can't deny that it has helped
others. I just felt it
was wrong not to at least
mention it, if even in theory.
Thanks again
for this website. I
highly recommend it to other
parents I know. Parents
should give it a try.....it's
SO worth it!!!
Janeen
Name: Shepard
Age: 4 yrs 9 months
On Diet: 3 weeks
I wanted to add our story to
your list. Our son has been
through speech therapy twice,
and has just completed evals at
our childrens hospital for
developmental disabilities. We
had heard the term autism/PDD
thrown around a few times, and
researched everything we could
on the web and through the
library. I had read about your
diet when he was almost three,
but didn't have the nerve to try
it then......maybe I was in
denial, boy do I wish I would
have. It was like he started to
slip away, and something
recently was telling me to
intervene quickly before we lost
him.
Three weeks ago, I decided to
give it a try. I wanted to try
it BEFORE he started any type of
therapy so I could get a clear
picture of how it helped him. I
had read about therapists
attributing any positive results
to therapy, not the diet. Well,
after 3 days without dairy, WOW!
All of a sudden we had an alert
child! He was talking more,
making sense of the world more,
and engaging us! When I phased
out wheat/gluten it just got
better. He is happier, his
behavior is better, his muscle
tone seems to be improving, eye
contact is great, he is speaking
like a young 4 year old would -
but that's OK with us!!! For the
first time he told me he was
hungry - before I always had to
ask. I doubt anyone would think
he is different from other kids.
He is asking kids to play with
him. This diet and website was a
blessing from God.
When we went in a week ago
for our formal diagnosis, we got
Autism Spectrum Disorder/PDD-NOS.
He needs language/communication
therapy, a little OT and social
skills training. When we told
the doctor about the results (a
teaching developmental ped) she
said "some people see
results, some don't - if you
think it's working for you
great". What a great
disappointment, but not totally
unexpected. When we told a
pediatrician in our medical
group that has seen Shepard
before, and also attends church
with us, she had never heard of
the diet and asked very
disapprovingly "well what
does he eat?" Truly
unbelievable that a lot of
physicians don't believe in
looking outside the box that ASD
can lock children into.
Luckily we are going to see a
ASD ped in April that also is
doing grant work on this diet -
so we really feel hopeful that
we are going to get proper help.
We are also going to ask her
about anti-yeast therapy.
The changes are so great, and
can come so quickly. I am fairly
skilled in the kitchen, so I am
adapting my good old Better
Homes and Garden red checkered
cookbook into gfcf recipes. So
far there are many successes
than foods he goes "EEEWWW"
to. I am taking him off any
residual soy this week, to see
if there is any more
improvement. I have also taken
myself off dairy, and feel
better! Hopefully I will have a
dairy free house by the end of
the year. I will say that having
the support of my husband from
day one has been a big
advantage. And my 7 year old
daughter is now learning to read
labels in the store to look for
ingredients he can't have. She
is even enjoying his foods!
Thank you for a great site!
For anyone who is unsure of this
diet - believe me, anything that
could help your child is worth
it.
Child’s
name: Philip
Age: 3 years; 2 months
Mom’s name: Elena
On diet: 7 months
My son was never
diagnosed with autism, but he
exhibited several symptoms
including:
Obsessive/compulsive opening
and closing of doors and
locks; rarely made eye contact
with anyone and was in a
general fog most of the time.
He also never babbled as
an infant and had not spoken
by the age of 2 ½, except for
a few simple words (e.g. Mama,
dada). He received
occupational therapy for 4
months and speech therapy for
2 months. I tried
countless other remedies
including fish oil, vitamins,
massages, etc. – nothing
seemed to work. He
remained in a fog.
On March 8, 2006, I was
in the park with my husband
and children and we met two
fathers with autistic
daughters. They told me
about GFCF. I started
the diet a week later – cold
turkey. GFCF transformed
my child’s life. On
the second day he started
making eye contact.
Within a week he could
recognize and recite the
entire alphabet. I no
longer had to call him several
times to get his attention.
He responded to me almost
immediately. 2 months
later he “flunked” out of
his speech therapy class,
because he had become so
talkative. After only 2
months on the GFCF diet (with
no vitamin or other
supplements) he showed 10
months of improved
development. 7 months
into the diet, Philip is
attending regular Pre-school
and his language skills are
nearly age appropriate.
Philip’s brother, who is 18
months older, was very
aggressive with other
children, but became calm and
well behaved immediately after
we started the GFCF diet.
I believe if your child has
any attention problems or
aggressive tendencies you must
try this diet for at least 3
months. It is a very
small price to pay! You
must know doctors or speech
therapists will never suggest
this diet, because it is not a
medically proven treatment.
I requested that it be
recommended to other parents
with students in Philip’s
speech therapy program, but
the therapist said she could
not legally do so.
Therefore, you are on your own
unless you find such remedies
“in the park”. Note:
The first month of cooking and
learning the GFCF diet is very
challenging. Afterwards,
it is a piece of cake, when
you see the results! It
is the greatest blessing that
I have had as a mother.
Praise the Lord for
answering many prayers like
mine!
Elena - “If ye shall ask
anything in my name I will do
it” (John 14:14)
Child's name: Joey
Age: 4 years, 4 months
On diet: 3 months
Mom's name: Julie
I just wanted to add our story
to the list. Our son Joey was
diagnosed with PDD-NOS on
September 25, 2005 at 4 years, 1
month. He was verbal, but
behavior was extremely
difficult, did not respond to
questions of any kind, and
echolalia was thick. He also had
terrible constipation and potty
training was proceeding very
slowly with nocturnal bowel
movements almost every night.
Our doctor handed us the
diagnosis, a flyer on PDD-NOS,
and told us he'd always need
help. That was it from a
developmental pediatrician.
We were on our own to find
out what we could do for our
son. Thankfully, the internet
is available now to help parents
connect and help each other,
since traditional medicine
obviously has very little to
offer at this point.
We went cold turkey GFCF. I was
and still am in nursing school
in a very demanding program.
However, I asked my instructors
if I could switch to part-time
status to allow time to shop and
do this diet for our son, and to
arrange for ABA and the numerous
visits to a DAN practitioner
that would follow.
Joey adapted well to the diet.
I'd say the results were
instantaneous with significantly
less difficult tantrums and
sleeping well through the night
for the first time in his four
year old life. His language has
increased greatly and echolalia
is virtually gone, although his
articulation is still poor (we
have him in speech therapy now
that we're funding ourselves
since our county school system
has yet to provide therapy to
him). We're seeing singing,
loads of imaginative play, he's
drawing faces, responding to
questions, coloring, and now
recognizes all letters of the
alphabet and his numbers. He is
counting one to one
correspondence to 15. He can
pedal a bike and stimming is
greatly reduced. He
responds with empathy to his
siblings and seems to understand
emotions in others very well,
commenting on "sad
faces" and "happy
faces." He can tell us now
that we're making him mad/sad,
etc. instead of merely throwing
a tantrum. He's been
attending a regular preschool
and needs assistance, but
socially he blends in well with
the other children at this point
and follows well with games and
class activities.
Through the diet and the ABA
he's received, he just seems
quicker and more alert and
responsive overall. We now see
what a highly intelligent
little boy we have. His
constipation is also GONE and he
has potty trained entirely
during the day, wearing only a
pull-up at night. Although our
son is less severely affected, I
still feel that even a child
like ours needs as intensive a
treatment as someone severely
affected. To be affected is to
be affected - and we can't just
minimize the higher functioning
children with a less intensive
approach.
We are only three months
into our treatment of Joey and
plan to do much more. We're
seeing a DAN doctor today in
fact as I write this. We have so
much hope and I don't doubt Joey
will achieve something wonderful
in his life. I so highly commend
the people in the world of
biomedical treatment who have
brought this and other
treatments to the forefront
-- all of them. They are true
pioneers and traditional
medicine ought to stop sneering
and start listening. The gfcf
diet is not the cure all, but is
the extremely important first
stepping stone to treatment
and, what is our our hope, a
complete recovery for our son.
Child's name: Ara
Age: 9 years
On diet: since April 05
Dad's name: Arsham
Mom's name: Ani
Ara was diagnosed to be
autistic at age 3.5, never
developed speech, has severe
focusing issues and trouble with
communication. We
tried speech therapy for a long
time and he started saying words
spontaneously
when he was 7 years old. 5
months ago we started the GFCF
diet, this was recommended to us
by a mother
who cured both of her autistic
boys with the GFCF diet.
Within 4 months of starting the
diet, Ara was potty trained,
started reading,
started saying long and
sophisticated sentences,
he lets us cut his hair without
any problem, hand flapping has
gone down to a
minimum (only if he gets very
excited), and
he is involved with other
children during games, in short
he is a changed
person.
Such a dramatic change in
such a short time was totally
unexpected, hence we
are now firm believers of
this diet and recommending it to
every parent who has autistic
child. We
are also giving Ara super
Nu-thera as dietary supplement
and planning to do some oral
chelation therapy administered
by an
expert. There is still a long
way to go but we
are confident that Ara will grow
up to become a normally
functioning person.
Arsam Antreasyan, PhD
"... if all my
possessions were taken from me
with one exception, I would
choose to keep
the power of communication, for
by it I would soon regain all
the rest" -
Daniel Webster
Child's Name:
Zach
Age: 10 years
On Diet: Since 1999
Mom: Sheryl
Zach was diagnosed as
severely autistic at the age of
3. He had lost all speech and
communication skills during
normal development (until age
1.5). Six months
after going on the diet 100%, he
went from no speech, thru
echolalia, then spontaneous
speech.
We followed up with ABA, AIT,
and Fast-Forward
and got our little boy back. He
has now been on the diet .5
years and is just completing 4th
grade in a regular classroom
with no
aide. The school is aware he had
'neurological damage' when
little and
has to be on this diet to
prevent further damage.
We were advised by the
ABA consultant to stop the 'A'
label as he no longer needed it.
He still
has some social delays but is
continually learning and progressing.
We expect he will be a full
functioning adult, needing only
his diet and
vitamins/supplements to keep
himself healthy. I
cannot tell you what happens if
he goes off the diet, as we
never allow
this. If we go out for dinner, I
take his food along and ask them
to heat any parts
that need heating in the
microwave. I keep frozen cupcakes
(Pamela's Chocolate Brownie mix
with a little honey added for
moistness after
thawing) in the freezer at
school and at church, for
when a treat is
needed.
When we travel, I take a small
cooler with freezer
packs, tape it up and label it,
and pack the dry goods in a
hard sided
suitcase. The airlines are very
cooperative as long as there
are no open
liquids. We even take his own
popcorn to the movies. How
do we do it? Since we are a
large family, I try to keep the
meals mostly gf/cf
and modify just the starches for
Zach (ie: use Prago Traditional
spaghetti mix and add meat, then
mix ours with cheap noodles
and Zach's with
Quinoa spaghetti noodles). I
tried baking his bread and
buns from scratch
and learned I am not a baker. So
I do splurge and buy Papa's
Loaf bread, Ener-G buns, and use
mixes (Miss Robens and Bob's Red
Mill) for other
starches. I take Zach with me to
buy ready-made items such
as cookies, and he has to finish
them before I buy a different
brand. This helps
him to be responsible for his
choices.
If you're not sure about trying
the diet because it's so much
work my
comment is "If there's a
chance of getting your child
back, isn't that
worth it?" Our doctor said
you have to do it at least 6
months. Plus,
there are lots of us willing to
help. **
PS - Zach's favorite meal is
French toast made with eggs and
water, Papa's
Loaf bread, Pam spray, pure
maple syrup, Johnsonville
Original Breakfast
Sausages, and Dari Free milk!
Thank you Judy
for all your hard work!
**(Note:
Join GFCFKids
, our free on-line diet support
discussion group, with
membership totaling over 10,000
families or find a listing of
local support groups across the
United States on our
Community Bulletin Board)
Child:
Geoffrey
Age: 3/6
On Diet: 6 days!
Mom: Dr. Tamara D
Hi Judy,
We are so excited we wanted to
share our progress:
Our son has not been formally
diagnosed with autism and/or PDD
but has been classified as a
"late talker". He has
never had any behavior problems
or self-stim like activities and
is a very warm happy and loving
child. His speech demonstrated
significant delays however (he
was classified at around the 18
month old level). He is around
the size of most 6 year olds so
you can imagine how hard it was
for him when other children
approached him and all he could
do was babble. We decided to
give the diet a try and after 6
days it is amazing! Geoffrey
would almost never initiate
speech. Words were limited to
songs or pointing out animals
names or the names of shapes.
This morning he brought me a
book and said "Panda
Bear" when we got to the
page with the bear. He is
laughing and engaging us in
speech after just a few days. It
almost feels like sleeping
beauty waking up from a deep
sleep. He has always been pretty
engaging but even this has
improved and he constantly wants
us to read him books and he is
very clearly repeating words.
Before we started the diet his
diet was very limited. Veggie
nuggets and bread, grapes and
tomatoes, ryr bread and butter
for breakfast. Yesterday he
actually tried eggs and a tiny
bit of sausage. Thanks so much
for this website and all the
info you provide. We will keep
you posted!
Child:
Kester Olivo
Age: 4 yrs.
On Diet: 3 weeks
Mom: Aixa
My name is Aixa
Olivo and my son is Kester
Olivo , a 4 y/o with
PPD-NOS. My child has been
on the diet for only 3 weeks but
the changes have been great and
I like to deeply thank the GFCF
diet support web site for
contributing to my child's
improvement.
Before I started the diet my son
was always in a bad mood. He
used to throw himself on the
floor, side walks, street, etc,
Everywhere we went, he always
had a tantrum. He was biting
himself and others, kicking,
pushing us away, screaming his
lungs out for days in a roll,
etc... I couldn't go out to the
stores with him because the
crowds used to bother him.
I was so depressed that I
spent days in tears without
knowing what to do to help my
little boy behave in a
normal way. I left the
hospital with a diagnosis and no
ideas of how to handle the
situation or how to face it.
Being a Registered Nurse myself
didn't make a difference in
confronting my son's problem,
but at least it gave me the
knowledge to understand better
about his neurological
disability and to try to
find hope in it.
I started the diet on my own
with the help of this great web
site. I also started my son
with some supplements. At
the beginning I was reluctant to
place him on the diet. I thought
that it was too difficult to
follow, I was too scared, I knew
my son favorites and only
acceptable foods contained wheat
on it. I was too afraid that he
was going to starve to death.
For my surprise, my child
started to eat with the spoon
and swallow his foods (no more
pocketing)!! It this a
miracle??? My son never swallow
or chewed a whole variety of
foods!!!
He started to make long
sentences with sense and
clarity. The screaming greatly
reduced. His ability to focus is
much better. He is now very
friendly and lovable. No more
head or feet banging at
night time while he is asleep. His
constipation disappeared, his
bloating and gas symptoms are also
gone. He was always smart, but
now he is even smarter, he is already
learning to recognize the
alphabet in only a few days of
practice.
I want to advise the
parents to take wise decisions
on time for your child's
well-being. Please, don't be
afraid to try new things if this
is going to contribute to the
wellness of your precious child.
Take one day and one step at
a time and if you persevere you
will be recompense with your
child's improvement.
Good luck to all of you. May God
help you and guide you
through the right path.
Sincerely,
Aixa
Child:
Josh
Age: 4 yrs.
on diet: 22 months
mom: Barbara
My son is four years old. He was
born at the end of March, 2000.
He has been
on the diet since August 5,
2002, at about 28 months of age.
Our son rolled
over at three months and sat up
at five months, and other
than chronic
constipation and dairy
allergies, he seemed completely
normal and
happy. His development gradually
slowed, however, and by six
months he stopped
rolling over and almost seemed
to "forget" that
skill. He developed a
noticeable tremor. He did not
crawl or move around on his own
until age 10
1/2 months, and even then his
only motivation was chasing
balls, which were
his main obsession. He could
play a form of "catch"
as early as seven months,
which impressed everyone but
concerned me, because literally
his*only* interest was balls. He
didn't seem to care about books,
animals, toys,
or even other people, and he
could watch television and amuse
himself in one spot for long
periods of time. By twelve
months, he had one perfect
word:
"dog." By 16 months he
was not yet walking, or even
pulling up by himself,
and he lost the word
"dog." He finally
began walking at 17 1/2 months.
At 18 months he became
obsessed with Blues Clues
videos, but he focused only
on the music and
the hand motions made by Steve,
the main character. He would
have watched this program ten
times a day if I would have
allowed it. He
did not recognize Blue or Steve
or any of the other characters
in other contexts,
like toy stores or in pictures
or when we went to a Blues Clues
birthday party.
He started standing in front of
the mirror for long periods
of time, watching
himself do an elaborate set of
hand motions that started
as an imitation
of Steve, but soon became more
complex. Before long he was
doing these hand
motions every day, all day long.
He began throwing huge, unexpected
tantrums if we tried to read to
him or if we took him in certain
restaurants or to
certain public areas. He
wouldn't look at me if I tried
to teach him a
word. He never pointed. He had
no words for the members of
his family or for
his friends and frequently did
not seem to notice or care
who was holding
him.
By 20 months I woke up with a
knot in my stomach every
morning. I dreaded play
group because it became
increasingly obvious how
"different" my son
was. Other
children were beginning to show
an interest in their diapers,
each other,
speaking, and the world in
general. My son was increasingly
tuning me out,
never called me Mama, and showed
no awareness of his body or
his surroundings.
When I took him to a petting zoo
with a group of other children,
he spent the entire visit
picking up wood shavings off the
ground. He
didn't even see the animals,
much less appear to be
interested in them. Chuck
E Cheese terrified him. He
feared water, music, and
unfamiliar videos,
even those made for children,
like Baby Einstein. He stopped
eating with
a spoon and went back to using
his fingers. For
his second birthday I invited
only very close family members:
my sister,
my parents, and a family friend
who is like an aunt to him. We
bought a swingset
for the backyard, hoping it
might help his development if
he had his very
own slide and swing. When we let
him outside that morning,
he didn't even
see it. He ran away in fear and
terror when we all sang "Happy
Birthday" to him. I found
him squatting in a corner at the
side of the
house, doing his hand motions.
I heard about the diet shortly
after his second birthday, and
finally got on the
right path in August of that
year, when he was 28 months old.
He started
talking ten days after we began
the diet. He has been developing
steadily and
normally since that day. He is
now four years old. He is
enrolled in
regular preschool and fits in
just fine. He is fully potty
trained. He
speaks conversationally, in
regular sentences, and although
his articulation
lags a little behind, any
stranger can understand him. He
played tee ball
this year and he was one of the
best players on the team.
He has a sense of
humor, he plays imagination
games with his younger brother,
and every day he is a little bit
more like everyone else his age.
It has been a
long, slow process, with leaps
in development and then weeks
when he seemed to
stall out, but overall he has
gained four years of skills
in a two year
period. He loves birthday
parties and was *so* excited on
his fourth
birthday when everyone sang and
he got to blow out the candles.
We invited
ten four year olds, and he was
proud and happy that all his
friends were
coming. He has absolutely no
unusual behaviors and his only
remaining difficulties
are language and to some extent,
social skills, although both
of these things
are improving rapidly. If
he gets something forbidden,
particularly gluten, it all
comes back -- the
hand motions, the tantrums, the
spaciness -- and now he finds it
so upsetting
that he is very vigilant about
following the diet himself.
I feel blessed and relieved to
have found Karen Seroussi's book
when I did. Words
cannot adequately express how
absolutely grateful I am to her
and to those
who helped me in the beginning.
I feel like the luckiest person
in the
world. There is just no way to
describe the sense of relief and
gratitude that
comes along with such a dramatic
change. My
son is GFCF and also 100% soy
free. Other than that, we have
no limitations
and take no supplements,
although we incorporate a heavy
dose of common
sense into his diet. Like any
mother, I try to limit the
amount of sugar
he eats and I try to make sure
he gets a full package of
nutrients, particularly
calcium. We use Pacific Rice
Drink because of the
acidophilus.
My son has had speech therapy
and occupational therapy, off
and on, although we
have not noticed much difference
during the off periods and the
on periods.
Mostly it just seems to be a
matter of time for him. These
stories meant the world to me
when I started this diet, and I
hope mine
helps someone else. I remember
when I first started the diet, I
went to
bed at night wishing, in some
secret place, that this diet
would be a miracle
and I would wake up to a son who
would say, "Good morning
Mommy!" It
didn't happen exactly that way.
But two years later, I have a
son who routinely
says "good morning,"
who understands emotions and
facial expressions
as well as any other
four-year-old, and who told me
last night, while
I was brushing his hair,
"Know what Mama? I wuv
you."
Barbara
Child: Ross
Age: 13 yrs.
On diet:: 1 1/2 years
mom: Beverly
My son Ross was diagnosed with
Asperger's when he was 10 years
old. As an infant, he had
major food intolerance and was
on a central line for feeding
for 9 months. He also had
continual gas and diarrhea
during infancy. At two
years of age, he was also
diagnosed with a deficiency in
his pancreatic enzymes.
Ross was a hyper kid even while
on his central line. I
just attributed it to his
being a boy, very different from
his two older sisters.
At age six, Ross was diagnosed
with ADHD and Central Auditory
Processing Disorder, and placed
on Ritalin which appeared to
calm him considerably.
Once he was diagnosed with
Asperger's, I began to do
research. When he was on
Spring Break from school, I
decided to try the elimination
diet which we had used with his
older sister years earlier, due
to allergies. In
retrospect, I was actually
beginning the GFCF diet without
knowing it. His withdrawal
was immediate. He had a
severe headache and appeared to
"hurt" all over as if
suffering from the flu.
After two days on the diet, he
began to beg for his food, then
demand it, in anger. Not
wanting to cause him to break
the diet totally, we allowed him
a burger at school on the fourth
day. He tolerated this
fine and seemed appeased.
By the end of the first week, he
was a much calmer child.
After about nine days on the
diet, I began doing research on
the internet and found the GFCF
diet. I called for my
husband to come and read the
research which confirmed what we
had been seeing already.
All of the pieces of the puzzle
began to fall into place and we
knew we were on the right track.
Ross was taken off gluten and
seemed to have no adverse
effects when it was
inadvertently added back into
his diet three months later.
He cannot have any milk or soy
products. When there is an
accidental infraction to these
products, he will become sick in
about an hour and report he is
dizzy, has a fever inside, and
that his head is pounding.
He is very vigilant about
reading labels and he is
beginning to make the connection
between how bad he feels when
the infractions occur and what
is causing the bad feelings.
I am so grateful for all the
material published that helped
me along the way. We
bought the diet package and read
it religiously.
My son would not be where he is
today if it had not been for
this diet and the information
made available regarding it.
Beverly
Child:
Benj
Age: 11
on diet: six months
mom: Annie
I
felt compelled to tell our
story because I read very few
stories on how older
children and adults respond
to this diet-
Our son Benj was diagnosed with
Asperger's Syndrome in
November of 2003. He's an
extremely bright kid and has
always managed to "get
by" within the school
system with good grades. He has
an amazing vocabulary and
command of language and he has a
photographic memory. We
always accepted his
"eccentricities" as
just part of being an extremely gifted
child ( and he was just like his
dad). In retrospect, we now
know otherwise. He always
had his nose in a book (
he taught himself to read at age
2), but he never had any friends
and he loved lining up
blocks and legos. He hid
under desks when he
felt uncomfortable and had
strange eye contact. He
also had odd play- loved
the same toys and the same
books- He had problems
understanding idioms and he has
had difficulties with changes in
routines. He was an extremely
fussy child, and he loves to
spin things!
After starting 5th grade, he
started to become extremely
aggressive, he began stimming excessively
and he began hitting
himself. His organizational issues have
always been less than
desirable , but we began to
see it effecting his
grades. Neither my
pediatrician, nor the staff at
the public school he attends
agreed with me when I mentioned
Asperger's. After getting
a diagnosis from a pediatric
neurologist, the school district
listened and did a another
round of testing.....and FINALLY
agreed with me.
We
put the entire family on the
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