|
This
document is not to be
used as medical advice
or in place of a
qualified
nutritionist. Many
parents have
joined together
providing a list of
foods they have found
to be gluten and
casein free.
Through our joint
effort, we want to
help other parents who
are also seeking
to improve the lives
of their children through
nutritional foods that
are gluten and casein
free. This diet is
helpful to our
children. This
list is a guide
to be used for calling and
verifying that
products are gluten
and casein free.
It does not list every
product that is gluten
free and casein free.
You must always read
labels! Use this
list with caution due
to the fact that
manufacturers change
their ingredients
without warning. This
may be due to
changes in the recipe,
changes in the
ingredients supplied
to the manufacturer,
or changes in the
production &
manufacturing methods,
including cross
contamination
concerns. Parents and
individuals with food
allergies and
intolerances are
responsible for
reading the labels and
confirming ingredients
of all products they
intend to use
regardless of how the
product is represented
on this site. Certain
unacceptable
ingredients may be
hidden under the
name of natural
flavorings. Modified
food starch is also a
vague term which does
not indicate the
source of the starch
(wheat or corn). Any
and all questions
and/or concerns about
a product should be
directed to the
manufacturer,
including the
possibility of cross
contamination. This
website cannot
guarantee that the
list of foods are
gluten and
casein free. The
products listed on
this website are to be
used as a guide only.
Further verification
may be needed due
to questionable
ingredients or cross
contamination
concerns. If anyone
has reason to believe
that the manufacturing
process and or
ingredients have
changed in the
following products and
should be either
included or deleted,
please write to
us at products@gfcfdiet.com
The following food and
additives are products
of the U.S.A. All
labels must be
read all of the time
as manufacturers are
known to change labels
without warning.
Links
GFCF & Other Food
Intolerances
Additional Treatment
Options
Links
to Autism Spectrum
Disorder Resources
Autism
Research Institute (ARI)
Fax: (619)
563-6840
www.autism.com/ari/
Dr. Bernard
Rimland
4182 Adams Avenue
San Diego, CA 92116
U.S.A.
This website contains
a large amount of
helpful information
and The "D.A.N."
"Defeat Autism
Now" Protocol
booklet can be
obtained here.
Treatments
& Approaches To
Autism www.autism-pdd.net/treatments
Pathways
Medical Advocates www.pathwaysmed.com
Dr. John
Hicks, M.D. F.A.A.P
Call for an
appointment 262-740-3000
(Offices in 6 states
nationwide)
Treating Autistic
Spectrum Disorders:
PDD, Sensory
Integration
Dysfunction &
Aspergers, Dr.
Hicks has been
treating children for
over 17 years. Because
of his passionate
efforts and
determination to find
a cure, the many
families looking for
more accurate
treatments now have a
place to turn: The
successful combination
of integrative,
holistic and
vibrational medicines
has brought Pathways
into 6 states
nationwide.
Functional Medical
Approach Specializing
in:
Physiologic
Biochemistry
Immune
System Dysfunction
Immunization Recovery
Nutritional Support
Environmental and
Metal Toxicity
Laboratory Analysis
www.pathwaysmed.com
The
International Autism
Research Center
http://www.icdrc.org/
Dr. Jeff
Bradstreet, M.D.,
FAAFP
Call for an
appointment:
1-321-953-0278
Melbourne, FL
Practicing in research
and treatment of
autism and related
disorders. The
Good News Doctor
Foundation is a
Christian ministry
that provides hope and
information on how to
eat better, feel
better and minister
more effectively as a
result of a
biblically-based,
healthy lifestyle. Dr.
Bradstreet is a
Christian family
physician and an
expert/lecturer on
Autism, ADD/ADHD, and
learning disorders.
Dr. Bradstreet treats
patients with symptoms
of Autism, ADD/ADHD
and learning
disorders.
Center
For Health &
Healing
Beth Israel
Medical Center
Lewis Mehl-Madrona,
MD, PhD.
Forum on Alternative
and Innovative
Therapies for Children
with Developmental
Disorders
http://www.healing-arts.org/children/autism-treatments.htm
Thoughtful
House Center for
Children (Dr. Andy
Wakefield's Center)
www.thoughtfulhouse.org
This facility
provides specialist
clinical and education
services for children
affected by childhood
developmental
disorders, in
combination with a
dedicated research
program. The goal of
Thoughtful House is to
utilize the benefits
of past and current
research and combine
the talents of leading
clinicians,
researchers and
educators in one
dedicated facility.
Thoughtful House is a
data-driven,
results-focused
environment for
generating "best
practice"
educational models and
setting new standards
of medical care for
children affected by
childhood
developmental
disorders. In
addition, Thoughtful
House will address the
physical, recreational
and creative needs of
children in areas of
occupational therapy,
speech therapy and
hippotherapy.
HRI/
Pfeiffer Treatment
Center
4575 Weaver
Parkway
Warrenville,Il.60555
(630)505-0300
www.hriptc.org
Leaders in the
research and treatment
of biochemical
imbalances, the
Pfeiffer Treatment
Center is a
not-for-profit
outpatient facility
for children and
adults. The
center serves patients
all over the United
States and 70
countries. They
specialize in the
evaluation and
management of
biochemical
imbalances. Their
mission is to increase
an individual's
ability to lead a
productive and
rewarding life by
focusing on the
research, education
and nutritional
treatment of
biochemical
imbalances.
Their practitioners
prescribe vitamins,
minerals, amino acids
and fatty acids based
on each patients
unique chemistry.
University of
Sunderland United
Kingdom
Paul Shattock
Information
provided on the use of
Gluten and Casein Free
Diets with people with
Autism. http://osiris.sunderland.ac.uk/autism/dietinfo.html
Unlocking
Autism www.unlockingautism.org
"Opening The
Doors To Autism
Awareness"
Gluten
and Casein Free
ANDI-Autism
Network for Dietary
Intervention
by Lisa Lewis and
Karyn Seroussi
www.autismndi.com
GFCFKids
Listserver with
membership of over
7500 families who are
using the GFCF Diet. This
list is unmoderated
and unrestricted. The
principle aim of this
list is to provide a
discussion forum for
parents of children on
the autism spectrum
who are avoiding
gluten and casein and
other substances in
their children's
diets. Discussions
include practical
information and tips
on following a GFCF
diet; scientific
research and opinion;
the latest
developments in
understanding GFCF
diet-related health
problems; your
personal stories and
experiences with
relation to GFCF
problems; information
on what food is GFCF
and what is not; tips
on how to eat out of
the house; recipes and
tips on how to cook
and prepare GFCF (etc)
food; what vitamins,
minerals, herbs and
other supplements may
be appropriate for a
child with autism, how
to cope with difficult
diet demands, plus
support for parents.
Appropriate topics for
discussion on the list
include anything at
all related to diet
and autism spectrum
disorders-including
GFCF but also yeast,
nitrates/nitrites,
dyes, vitamins,
minerals, supplements,
dealing with teachers,
friends, schools,
outings, siblings,
testing, etc. Highly
recommended! Easy to
join.
http://www.groups.yahoo.com/group/GFCFKids
Gluten
Intolerance
Excellent website for
those who are on a
gluten free diet.
www.gflinks.com
Autism
Educational Services
1218 Steeplechase
Court
Toms River, NJ 08755
Tel: 732-473-9482
Fax: 732-473-0163
Email: ngilder@att.net
Nadine G. Gilder,
through her company,
Autism Educational
Services,
provides personal GFCF
Diet consultation.
"Gluten and
Casein Dietary
Overview" http://www.advimoss.no/GFCF_results.htm
by Jorgen &
Suzanne Klaveness
The website
contains a valuable
overview of the GFCF
Diet.
Residents of Moss,
Norway, the Klaveness'
have written an
excellent synopsis of
the progress and
regression they have
recorded during the
past 8 years
They attribute the
tremendous improvement
of their son's life,
who is now 16 years
old, to this
dietary intervention.
This website is a
valuable resource for
parents who are either
using or contemplating
the GFCF diet for
inclusion with their
child's therapy.
This is not only
applicable to all
children who fall
within the autism
spectrum, but
especially applicable
if one can relate any
similarities between
their child and what
Mr. & Mrs.
Klaveness report from
their own child's
history.
Gluten
and Casein Food Lists
from United Kingdom
http://www.thepeacefamily.force9.co.uk/gfcf.html#list
Understanding and
Implementing a
Gluten/Casein-Free
Diet
by Lisa Lewis
http://members.aol.com/lisas156/gfpak.htm
Nutrition Clinic
Biopteri's Page on the
Gluten/Casein-Free
Diet
http://www.sci.fi/~biopteri/e-index.html
Downs Syndrome
Some individuals
with Downs Syndrome
may also benefit from
the GFCF Diet http://www.dsrf.co.uk
Casein
Free Only
ADHD
and Milk (Lots of
Links)
http://www.nowheat.com/grfx/nomilk/index.htm
No-Milk
Page (Lots of Links) http://www.panix.com/~nomilk/#prod
Food Allergies
Casein
is a protein derived
from milk, not to be
confused with
lactose also derived
from milk. Lactose is
a sugar that ferments
in the small intestine
of those allergic to
dairy. Both are milk
derivatives but affect
the body in different
ways. In lactose
sensitive people
(those who also
cannot tolerate dairy
products), the
digestive system does
not produce enough of
the lactase enzyme to
break down the complex
lactose sugar into
simpler sugars. The
lactose sugar ferments
in the small
intestine, producing
gas, bloating, cramps,
and diarrhea.
We believe that the
dairy intolerance
found in some autistic
children, is from the
casein which is a
protein found in milk.
To the best of our
knowledge the casein
is also not broken
down properly in the
digestive system. It
is possible that the
effect of casein
intolerance involves
much more complexity
of the immune system
than that of lactose
intolerant
individuals.
There are specific
tests that must be
ordered for gluten and
casein intolerance.
Please see the Labs
and Testing section.
Dr. Braly's
Allergy Relief the
Natural Way
Current
advancements in
allergy diagnoses and
natural therapies
Website
providing practical
and reliable
"hot-off-the-press"
educational
information, along
with an expanding list
of science-based
nutritional products
and laboratory
services from one of
the world's leading
authorities on natural
therapies for food
allergy, gluten
sensitivity and Celiac
Disease. www.drbralyallergyrelief.com
Feingold
Association
Diet which
restricts further food
restrictions:
natural salicylates,
certain food
preservatives,
synthetic flavorings
and colors, etc.
http://www.feingold.org/index.html
The Allergy
Connection
Dr.Layton
www.allergyconnection.com
Hidden
Allergens In Foods
www.allergyadvisor.com/hidden.htm
Corn
Allergy
Corn
and corn products are
used in many food
products, mostly in
the form of sweeteners
or cornstarch. If you
have a corn allergy,
you must avoid all
sources of corn
protein. Corn
syrup has replaced
imported sugar in a
host of products like
soda and candy.
Baking
powder (can contain
cornstarch)
Corn chips
Corn tortillas
Corn flakes
Corn alcohol
Corn extract
Corn flour
Corn meal
Corn oil
Corn starch
Corn sugar
Corn sweetener
Corn syrup
Corn syrup solids
Dextrose (also known
as glucose or corn
sugar)**
Dextrin***
Flavorings (can
contain corn syrup)
Food starch
Fructose
Glucose
Gluten
Grits
High fructose corn
syrup
Hydrolyzed corn
Hydrolyzed corn
protein
Hominy
Maize
Maltodextrin
Malt syrup
Modified corn starch
modified food starch
Partially hydrolyzed
corn oil
Powdered sugar
Vegetable gum
Vegetable starch
Some
of the following MAY
contain corn
derivatives Always
read labels
Prepackaged
cereals
Spaghetti sauces
Peanut butter
Baked beans
Canned soups
Processed meats
Imitation seafood
Imitation cheeses
Cosmetics
Adhesives (stamps,
envelopes, stickers)
Toothpaste
Whole corn
Vitamin C
Popcorn.
Dextrates
Maltodextrin
Caramel
Malt syrup
**Dextrose
is used in cookies,
ice cream and sports
drinks. It is also
found in crispy foods
such as french fries,
fish sticks, and
potato puffs.
***Dextrin
and maltodextrin,
often made from corn
starch, are used in
sauces, dressings, and
ice cream as
thickening agents.
Commercial
food producers often
make caramel flavoring
with corn syrup
instead of cane or
beet sugar. Corn is
used in maple, nut,
and root beer
flavorings for ice
cream, ices, candy,
and baked goods. Many
soft drinks and fruit
drinks contain corn
syrup in the
flavoring.
Grits,
hominy, maize, and
marshmallows are also
sources of corn. Corn
starch is added to
most confectioner's
sugar and baking
powders to keep them
from caking or
clumping.
Corn
may or may not be in
food starch, modified
food starch, vegetable
gum, or vegetable
starch. The
manufacturer should be
contacted if these
terms appear on an
ingredients label to
see if corn is a
factor.
Parents
of Food Allergic Kids
(the original "POFAK"
Internet discussion
group). Fee to
join
http://www.kidswithfoodallergies.org/community.html
Keywords: milk
allergy, egg allergy,
peanut allergy, wheat
allergy, nut allergy,
soy allergy, asthma,
anaphylaxis, food
allergy, food
allergies.
Online support group
for parents of
children with multiple
food allergies. POFAK
is for sharing
experiences we
encounter as parents
of children with
severe food allergies
and for providing
moral support for one
another. Our group is
community where Moms
and Dads can share
their frustrations and
successes as they meet
these challenges.
Raising a child with
such allergies,
especially in infancy
through the school
years, can be a
tremendous challenge
that only other
parents of food
allergic children can
truly understand.
The
group also includes
parents breastfeeding
their food allergic
children, and parents
of children on
hypoallergenic and
elemental formulas for
their food allergies,
protein intolerance,
eosinophilic
esophagitis or
eosinophilic
gastroenteritis. The
group's focus also
includes children's
latex allergy, drug
allergies and
anaphylaxis. POFAK is a service of
Food Allergies Etc.,
Inc.
http://groups.yahoo.com/group/AUTISM-FBI
"FIGHTING BACK
with dietary
INTERVENTION" is
a list for the
experienced parent
using dietary
intervention in the
treatment of their
child afflicted with
autism.
The focus of this
group will be to give
support to fellow
parents who already
have their child on a
gluten-free,
casein-free,
yeast-free,
sugar-free,
chemical-free,
allergy-free and
hydrogenised oil-free
diet. This
list is for
intermediate through
advanced dieters, not
for beginners.
Food Allergy
Network www.foodallergy.org
This is the Food
Allergy Network, a
MAJOR organization
with so much to offer.
They have products, a
newsletter, free
recall notices, and so
much useful
information. FAN
helps those with
allergies,
giving knowledge
and materials
needed to keep those
with allergies free
from harm. When
a manufacturer makes a
mistake in labeling,
instant recall notices
are sent via e-mail.
Their newsletters are
WONDERFUL! This
organization is like a
major hub for those
with food allergies,
and would be very
helpful as a reference
to parents
implementing this diet
A
great resource for all
food allergies.
Helpful booklets for
teachers and parents
of children with
special dietary needs,
travel tips, updates
on Allergic foods,
newsletters. special
stickers for allergic
foods, etc.:
Egg
Allergy
by
Antony Ham Pong, MBBS
Dr. Ham-Pong is
lecturer, Department
of Pediatrics,
University of Ottawa;
consultant, Children's
Hospital of Eastern
Ontario; private
practitioner.
Egg allergy usually
begins in infancy,
often soon after egg
is started. Children
who are egg allergic
will often refuse egg
when it is given to
them. It usually
disappears by age five
to seven years, but
may sometimes be
lifelong. Egg white,
especially raw or
poorly cooked causes
more severe allergy
than egg yolk (yellow)
e.g., tasting raw
batter, playing with
egg shells, or egg
white icing. Mildly
egg allergic children
can often eat food
prepared with small
amounts of egg e.g.,
cakes, muffins,
without an immediate
reaction. However,
these trace quantities
may aggravate eczema,
and may cause the egg
allergy to stay
longer. Therefore
unless told otherwise,
all eggs should be
avoided, even in
traces in baked goods
in the first few years
of life. Egg allergic
people are not usually
allergic to chicken.
Eggplant is okay.
An
allergic reaction to a
food usually begins
within minutes but may
be delayed 2 - 4
hours, and usually
lasts less than one
day. The more
severe the allergy,
the smaller the amount
required to cause a
reaction. Typical
immediate allergic
reactions to foods
include rash, hives or
redness around the
mouth, which may
spread to the rest of
the body, immediate
runny nose, sneezing
and itchy watery eyes,
coughing, choking or
gagging, wheezing and
trouble breathing, and
cramps, vomiting and
diarrhea. The allergic
reaction can stop at
any stage, or may
cause anaphylaxis.
Anaphylaxis is a
severe allergic
reaction which
involves several parts
of the body and can
lead to death.
Severe
egg allergy: Can
develop
anaphylaxis with
even small
amounts: strict
avoidance of all
traces of egg
proteins. Keep egg
out of the house.
Use EpiPenâ
immediately with
any reaction to
ingestion of egg
to prevent
anaphylaxis.
Mild
to moderate egg
allergy: Small
traces of egg in
cooked goods can
be eaten if your
allergist okays
this, e.g., bread,
cakes, cookies.
Avoid foods with
more egg e.g.,
French toast,
mayonnaise,
pancakes etc. It
may be recommended
to avoid all
traces of egg to
help the allergy
go away more
quickly, or to
reduce eczema.
When
reintroducing eggs,
try small amounts
baked in muffins or
cakes e.g., one egg or
less to a cake or
dozen muffins. Then
slowly increase the
amount of eggs. Then
if there is no
reaction, try 1/4
teaspoon hard boiled
egg yolk, then larger
amounts. Then try hard
boiled egg white
slowly. Finally, try
less well cooked egg
white e.g., omelet,
mayonnaise.
WHAT
CONTAINS EGG?
WHAT
MAY CONTAIN EGG?
-
Cake
icing, egg
substitutes, egg
shampoo, fancy ice
creams e.g.,
french vanilla.
-
Seasonings
and natural
flavors may
contain egg
proteins which are
not labelled as
egg.
-
Binders
and fillers,
batters e.g. for
processed meats,
poultry, surimi.
-
Bread,
cakes, desserts,
baked goods with
glazes, fancy
coffee, ice cream
& yogurt.
-
In
Europe, tablets,
lozenges, eyedrops,
nose drops, and
non-Canadian
cheese may have
egg lysozyme.
-
Yellow
baked goods; shiny
glaze on baked
goods; white
chocolate
-
Egg
white may also be
used in fancy
coffee to make the
foam; and
occasionally to
clarify soup stock
used for some
jellied soups,
consommé, broths
and homemade wines
and homemade root
beer; lecithin is
usually from soy,
but occasionally
may be from egg.
-
Examples of foods
to be cautious
about (i.e., may
contain egg)
-
|
Beverages
|
eggnog,
malted
beverages,
root beer,
Orange
Juliusã
drink
|
|
Breads
and rolls
|
with
eggs or
crust
glazed
with eggs,
pancakes,
waffles,
doughnuts,
muffins,
soda
crackers,
pretzels
|
|
Desserts
|
cakes,
cookies,
cream-filled
pies,
meringues,
custard,
ice cream,
sherbet
|
|
Breaded
foods
|
breaded
meats,
meatballs,
meat loaf,
some
sausages
|
|
Noodles
|
egg
noodles,
vermicelli,
macaroni,
spaghetti
|
|
Salad
dressings
|
Caesar
salad,
mayonnaise
|
|
Sauces
|
cream
sauce made
with eggs,
e.g.,
hollandaise,
tartar
sauce,
marshmallow
sauce
|
|
Soups
|
broth,
consommé,
bouillon
if egg
added
|
|
Sweets
|
chocolate
candies
with cream
fillings,
marshmallow
candy,
divinity,
fudge,
cake
icings
|
|
Miscellaneous
|
baking
mixes,
fritter
batter,
batter-fried
foods,
soufflé,
puddings,
dessert
powders,
egg
powders or
commercial
egg
substitutes,
pet foods
|
EGG
SUBSTITUTES IN
COOKING.
Egg-free
Egg Replacer (check in
grocery/health food
stores).
Substitutes
for one egg: Use
either of these 3:
-
2
tbsp flour + 1/2
tbsp shortening +
1/2 tsp baking
powder + 2 tbsp
liquid or
-
1/2
- 1 tsp baking
powder or
-
1
tsp yeast +
1/4 cup warm
water.
Gluten
Free/Celiac Disease
The
following is not
medical advice
People
with celiac disease
are not autistic but
many individuals
who are in the
autistic spectrum
may have celiac
disease. Those
who have celiac
disease are unable to
eat foods that contain
gluten. (Please
note: Those with
Celiac disease
restrict gluten but do
not need to restrict
dairy/casein from
their diet due to
celiac disease.)
For
more information visit
http://www.4001.com/celiac/spokesperson.htm
for
video clips about
Celiac disease which
may be viewed on your
computer.
What is celiac
disease?
Celiac disease is a
genetic disorder
affecting children and
adults. People with
celiac disease are
unable to eat foods
that contain gluten,
which is found in
wheat and other
grains. In people with
celiac disease, gluten
sets off an autoimmune
reaction that causes
the destruction of the
villi in the small
intestine, causing
damage and illness.
What are the
symptoms of celiac
disease?
Symptoms of celiac
disease include
diarrhea, weight loss,
abdominal pain,
chronic fatigue,
weakness,
malnutrition, and
other gastrointestinal
problems. In children,
the symptoms may
include failure to
thrive (an inability
to grow and put on
weight, irritability,
and inability to
concentrate, diarrhea
and bloating. Further,
people affected by
celiac disease may
experience extra
intestinal symptoms
that involve many
systems and organs
including bones
(osteoporosis,
arthritis, and joint
pain), blood (anemia
and bleeding),
reproductive system
(infertility and
reoccurring abortion),
nervous system
(chronic fatigue
syndrome, depression,
dementia), and
behavioral changes.
How common is
celiac disease?
Nearly one out of
every 150 Americans
suffer from celiac
disease, according to
a new study by the
University of Maryland
Center for Celiac
Research in Baltimore.
The research indicates
that celiac is twice
as common as Crohn's
disease, ulcer.
colitis and cystic
fibrosis combined.
First degree relatives
of celiacs (parents,
children, siblings)
and those with other
autoimmune disorders,
such as Type I
Diabetes and
Rheumatoid Arthritis
have a much higher
prevalence of celiac
disease.
How is celiac
diagnosed?
A blood test is now
available to screen
for the presence of
specific antibodies. A
biopsy of the
intestine (before
beginning a gluten
free diet) is needed
to make a final
diagnosis.
What are the
long-term effects of
celiac disease?
Untreated celiac
disease can be life
threatening. Celiacs
are more likely to be
afflicted with
problems relating to
malabsorption,
including
osteoporosis, tooth
enamel defects,
central and peripheral
nervous system
disease, pancreatic
disease, internal
hemorrhaging, organ
disorders (gall
bladder, liver, and
spleen), and
gynecological
disorders. Untreated
celiac disease has
also been linked to an
increased risk of
certain types of
cancer, especially
intestinal lymphoma.
What is the
treatment for celiac
disease?
There are no drugs to
treat celiac disease
and there is no cure.
But celiacs can lead
normal, healthy lives
by following a gluten
free diet. This means
avoiding all products
derived from wheat,
rye, barley, oats, and
a few other
lesser-known grains. *
http://celiaccenter.org/Facts.html
Celiac
Website
This website for
those with celiac
disease/gluten
intolerance, ( www.celiac.com
) had its' beginning
in 1995. It
contains information
which is
valuable to people who
have Celiac Disease,
which is an
intolerance to all
gluten containing
products. There are
many people diagnosed
with Celiac Disease by
the medical community.
However, they do NOT
restrict casein
from their diets
unless there is also
an intolerance to casein.
Please note that
products listed
by the Celiac Groups
are only products
containing
"gluten".
Confirmation must
be made to establish
whether these products
are also casein
free. The Celiac's
website also contains
some valuable
information concerning
tax deductions and
dietary restrictions.
This may be a topic
you wish to research
and discuss with your
physician, CPA
or accountant.
Gluten-Free ONLY
Food List
Products listed are
for those who cannot
tolerate gluten.
PLEASE NOTE: products
listed are not
necessarily CASEIN
free! http://www.geocities.com/HotSprings/Spa/4003/gf-index.html
"Nutrition
News Focus" is a
free daily electronic
newsletter recommended
by Midwestern Gluten
Intolerance Group (MGIG)
http://www.NutritionNewsFocus.com/
Travel Tips
The following website
can be helpful in
locating ONLY gluten
free food while
traveling. Some
of the eating tips
provided here will
also point to the
direction of casein
free foods. Calling
ahead of your
traveling to verify
GFCF locations is
suggested. http://www.idsl.net/celiac/travel/index.htm
Celiac
(Gluten Free Only)
Support Groups
Celiac Sprue
Association/United
States of America,
Inc. (CSA/USA)
P.O. Box 31700
Omaha, NE 68131-0700
(402)558-0600
Gluten Intolerance
Group (GIG)
15110 10th Ave SW,
Suite A
Seattle, WA 98166-1820
Telephone:
206-246-6652
Fax:
206-246-6531
Website:
www.gluten.net
Email:
info@gluten.net
Executive Director:
Cynthia Kupper, C.R.D.
(Certified Registered
Dietitian)
(and she has Celiac
Disease) is very
willing to work with
anyone that calls
Celiac Disease
Foundation
13251 Ventura
Blvd., Suite 3
Studio City, CA
91604-1838
(818)990-2354
American Celiac
Society Dietary
Support Coalition
58 Musano Court
West Orange, NJ
07052-4103
PHONE# (201)325-8837
The Tri-County Celiac
Sprue Support Group
has a "Shopping
Guide" for
$10.00. It is updated
yearly. It lists
common products in
grocery stores which
they have determined
to be gluten-free.
It is not
all-inclusive but is
an excellent guide to
some of the GF
products that are
readily
available.
Soy
Allergy
Soy
is in the top ten
foods that people are
allergic. It is
not the soybean but
one or more of the soy
proteins that are
causing the problem.
As in
ALL food allergies,
if you
are to allergic soy,
it is best to read all
ingredient labels, and
if in doubt, contact
the manufacturer of
the product before
purchasing it.
Where To Find
Soyfoods
The more popular
soyfoods such as tofu,
meat alternatives, soy
sauce, soy flour and
soybean oil, can be
found in supermarkets.
In natural and health
foods stores you will
find the greatest
variety of soyfoods.
Asian food stores
carry most of those
soyfoods used in East
Asia. Several
products, such as
textured soy flour,
textured soy protein
concentrates, soynuts
and soynut butter can
be obtained through
mail-order catalogs.
If you have questions
about these soyfoods,
call your local health
or natural food store,
a manufacturer of the
product.
Things
to avoid for Soy
Allergies
Green Soybean (edamame)
Hydrolyzed vegetable
Protein (HVP):
Hydrolyzed vegetable
protein (HVP) is a
protein obtained from
any vegetable,
including soy beans
that is a flavor
enhancer that can be
used in soups, broths,
sauces, gravies,
flavoring and spice
blends, canned and
frozen vegetables,
meats and poultry.
Soy Based Infant
Formulas
Lecithin (Lecithin is
extracted from soy
oil, though safe for a
majority of
soy-allergic people)
It is used in
foods that are high in
fats and oils to
promote stabilization,
antioxidation,
crystallization, and
spattering control. It
is used as an
emulsifier in
chocolate. Most infant
formulas contain soy
lechithin.
Meat alternatives are
vegetable and grain
based foods with a
meat-like texture that
can be used to replace
meat in many recipes.
Examples of meat
alternatives are soy
products, such as
tofu, tempeh, and
textured vegetable
protein (or “TVP”);
wheat-based meat
alternatives include
seitan or “wheat
meat.” Meat
alternatives are
sometimes used to make
meat analogs, or foods
that look and taste
like specific types of
meat products, such as
burgers, hot dogs, and
cold cuts.
Miso, used to flavor
soups, sauces,
dressings, marinades
and pâtés, is a
rich, salty condiment
made from soy beans
and a grain such as
rice.
Mono-diglyceride,
another soy
derivative, is used
for emulsion in many
foods
Monosodium glutamate
(MSG) may contain
hydroylzed protein
which is often made
from soy.
Natto is made of
fermented, cooked
whole soybeans.
Because the
fermentation process
breaks down the beans'
complex proteins,
natto is more easily
digested than whole
soybeans. It has a
sticky, viscous
coating with a cheesy
texture. In Asian
countries natto
traditionally is
served as a topping
for rice, in miso
soups and is used with
vegetables. Natto can
be found in Asian and
natural food stores.
Natural Flavors listed
on ingredient labels
may be a soy
derivative
Non-dairy frozen
desserts are available
as substitutes for
ice cream, sorbet,
sherbet, frozen
sandwiches, fudge
pops, fruit pops, and
sundaes. Non-dairy
frozen desserts come
in a huge variety of
flavors, and low-fat,
fat-free, and
sugar-free versions
are available.
Oyster sauce (most
brands contain soy
protein
Soy cheese, a
substitute for sour
cream or cream cheese,
is made from soy milk
Soy Fiber
whether okara, soy
bran, and soy isolate
fiber are used as food
ingredients.
Soy bran is made from
hulls (the outer
covering of the
soybean), which is
removed during initial
processing. The hulls
contain a fibrous
material which can be
extracted and then
refined for use as a
food ingredient.
Soy Isolate Fiber
(also known as
structured protein
fiber (SPF)
Okara is a pulp fiber
by-product of soymilk.
It has less protein
than whole soybeans,
but the protein
remaining is of high
quality. Okara tastes
similar to coconut and
can be baked or added
as fiber to granola
and cookies. Okara
also has been made
into sausage. Look for
okara in natural food
stores.
Soy Flour, whether
natural, defatted, and
lecithinated, is made
from finely ground
roasted soy beans.
They are often used to
give a protein boost
to recipes. (It is
used in most muffins,
some doughnuts and any
breads, and other
bakery goods.)
Soy Grits, made from
toasted coarsely
cracked soy beans, is
used as a flour
substitute
Soy Meal and soy oil
are used in a number
of industrial
products, including
inks, soaps, and
cosmetics.
Soy Milk is used alone
or can be made into
soy yogurt, soy
cheese, or tofu
Soy oil, the natural
oil extracted from
whole soy beans, is
the most widely used
oil in the United
States. Soy oil is
used to make most
margarines, Crisco and
other vegetable
shortenings, prepared
pasta sauces,
worchestershire sauce,
salad dressings,
mayonnaise, canned
tuna, dry lemonade
mix, and hot chocolate
mix. Most commercial
baked goods like
breads, rolls, cakes,
cookies, and crackers
contain soy oil. Some
prepackaged cereals
are also made with soy
oil.
Soy protein can be
labeled as soy protein
concentrate, isolated
soy protein, textured
soy protein (TSP), and
textured soy flour (TSF).
Textured soy flour is
widely used as a meat
extender. Most soup
bouillons contain some
form of soy protein.
Many meat alternatives
contain soy protein or
tofu.
Textured Soy Flour
Textured Vegetable
Protein (TVP)
Tuna (canned,
"packed in
water" read the
fine print: most
contain vegetable
broth, which is made
from soybeans.
Soy Sauces, the most
common being Tamari (a
by-product of making
miso), Shoyu (a blend
of soy beans and
wheat), and Teriyaki
(with added sugar,
vinegar and spices),
are dark brown liquids
made from soy beans
that have undergone a
fermenting process.
(Tamari, Shoyu,
Teriyaki Sauce)
Soy Yogurt, made from
soy milk, is an easy
substitute for sour
cream or cream cheese.
Non dairy frozen
desserts are made from
soy milk or soy
yogurt.
Soy Beans, whole
Soy Milk and Beverage
Soy Nut Butter
Soy Nuts
Soy Oil (though safe
for a majority of
soy-allergic people)
Sprouts, Soy
Tempeh, a
traditional Indonesian
food, is a chunky,
tender soybean cake
Tofu and Tofu
products, also known
as soybean curd, is a
soft cheese-like food
made by curdling fresh
hot soy milk with a
coagulant. It is a
bland product that
easily absorbs the
flavors of other
ingredients with which
it is cooked. When
mixed with other
ingredients it can
simulate various kinds
of meat.
Vegetable Broth
(frequently contains
hydolyzed vegetable
protein from soy)
Vegetable Oil, a
generic term, is
usually 100 percent
soy oil or a blend of
soy oil and other
oils.
Vegetable Protein is
often the term used
for soy protein.
Vitamin E contains soy
bean oil.
Whipped Toppings,
soy-based
Yuba
Sulfite
Allergy
Sulfites
are sulfur based
preservatives that are
used to prevent or
reduce discoloration
of light-colored
fruits and vegetables,
prevent black spots on
shrimp and lobster,
inhibit the growth of
microorganisms in
fermented foods such
as wine, condition
dough, and maintain
the stability and
potency of certain
medications.
Sulfites
can also be used to
bleach food starches,
to prevent rust and
scale in boiler water
that is used to steam
food, and even in the
production of
cellophane for food
packaging More
Information
Yeast Free
William
G. Crook, M.D. http://www.candida-yeast.com
Information: Candida-Yeast
Informative website
http://www.nutritioninstitute.com/Autism.html
Information about a
yeast free diet and
available books
("Feast Without
Yeast" by Dr.
Semon and "The
Yeast Connection"
by Dr. Crook.
"Allergy
& Candida Cooking
Made Easy" by
Sondra K. Lewis,
Lonnett Dietrich
Blakley (November
1996)
"The
Body Ecology Diet :
Recovering Your Health
and Rebuilding Your
Immunity"
by Donna Gates, Linda
Schatz (1997)
"Candida
Albicans Yeast-Free
Cookbook: How Good
Nutrition Can Help
Fight the Epidemic of
Yeast-Related" by
Pat Connolly, Beatrice
Trum Hunter,
Introduction by Dr.
William G. Crook
(March 1, 2000)
"The
Candida Control
Cookbook : What You
Should Know and What
You Should Eat to
Manage Yeast
Infections"
by Gail Burton
Paperback - 240 pages
3 edition (April 1996)
"Complete Candida
Yeast Guidebook :
Everything You Need to
Know About Prevention,
Treatment, &
Diet" by Jeanne
Marie Martin, Zoltan
P. Rona (August
1996)
"Toxic
Immune Syndrome
Cookbook:Yeast-Free
Hypoallergenic Recipes
to Support Your Immune
System" by
William R. Kellas
(August 1995)
"Food
Allergies and Food
Intolerance : The
Complete Guide to
Their Identification
and Treatment" by
Jonathan Brostoff,
Linda Gamlin
(May 2000)
Rise
In State Statistics
US
Department of
Education Figures On
Autism
Number and Change in
Number of Children
Ages 6-21 Served Under
IDEA, Part B
[Thanks to Ray Gallup
of the Autism
Autoimmunity Project.]
http://www.ideadata.org/tables/ar_aa2.htm
The Autism
Explosion
Bernard Rimland, Ph.D.
Autism Research
Institute
4181 Adams Avenue
San Diego, CA 92116
http://autism.com/ari/editorials/explosion.html
The Autism
Autoimmunity Project
http://www.gti.net/truegrit/
Research
University
of Florida
Dr. J. Robert Cade,
M.D.
www.autism-diet.com
1-800-225-5404.
University of Florida
researchers reported
in the March 1999
issue of the journal
Autism findings from
two novel animal
studies indicating
autism and
schizophrenia may be
linked to an
individual's inability
to properly break down
a protein found in
milk.
The digestive problem
might actually lead to
the disorders'
symptoms, whose basis
has long been debated,
said UF physiologist
Dr. J. Robert Cade.
Further research is
needed before
scientists have a
definitive answer.
When not broken down,
the milk protein
produces exorphins,
morphine-like
compounds that are
then taken up by areas
of the brain known to
be involved in autism
and schizophrenia,
where they cause cells
to dysfunction.
The animal findings
suggest an intestinal
flaw, such as a
malfunctioning enzyme,
is to blame, says Cade,
whose team also is
putting the theory to
the test in humans.
Preliminary findings
from that study -
which showed 95
percent of 81 autistic
and schizophrenic
children studied had
100 times the normal
levels of the milk
protein in their blood
and urine - have been
presented at two
international meetings
in the past year but
have not yet been
published.
When these children
were put on a
milk-free diet, at
least eight out of 10
no longer had symptoms
of autism or
schizophrenia, says
Cade, a professor of
medicine and
physiology at UF's
College of Medicine
and inventor of the
Gatorade sports drink.
His research team
includes research
scientist Dr. Zhongjie
Sun and research
associate R. Malcolm
Privette.
"We now have
proof positive that
these proteins are
getting into the blood
and proof positive
they're getting into
areas of the brain
involved with the
symptoms of autism and
schizophrenia,"
Cade said.
In the UF studies,
researchers injected
rats with the protein
beta-casomorphin-7,
one of the key
constituents of milk
and the part that
coagulates to make
cheese. They
then observed their
behavior and later
examined brain tissue
to see whether the
substances accumulated
there.
Beta-casomorphin-7 was
taken up by 32
different areas of the
brain, Cade said,
including sections
responsible for
vision, hearing and
communication.
This could explain
several of the things
one sees in autism and
schizophrenia, such as
hallucinations,"
her said.
"If part of the
brain puts out a false
signal because of
casomorphin, it could
result in the person
seeing something
that's not really
there; either a visual
or auditory
hallucination could
occur."
There are a whole
number of behaviors
that the rat has after
beta-casomorphin-7
that are basically the
same as one sees in
the human with autism
or
schizophrenia,"
he added.
"if we ring a
bell beside a rat's
cage, it normally
looks up to see where
the noise is coming
from. But the
rats after
beta-casomorphin-7
didn't do that - they
were completely
oblivious to the
bell-ringing above
them. This
struck us as
interesting because
many mothers of
autistic children
comment that they seem
at times to be totally
deaf - they talk to
their children and
they just don't seem
to hear them."
Researchers suspect
the process begins in
the intestine where
the body absorbs the
protein when a person
eats foods containing
it. "We
think this process is
linked to the
production of
antibodies in the gut
when you eat something
you're sensitive
to," Cade said, "Both
schizophrenics and
autistics have a high
incidence of (certain)
antibodies, and have
high incidence of
diarrhea, which points
to an intestinal
disorder."
So we think that with
autism and
schizophrenia, the
basic disorder is in
the intestine, and
these individuals are
absorbing
beta-casomorphin-7
that they normally
should break down in
the body as amino
acids, rather than
peptide chains up to
12 amino acids
long."
(this text written by
Melanie Fridl Ross was
taken from the June
22, 1999 issue of
Vital Signs.)
(editor's note: There
are also some children
falling within the
autism spectrum who do
not have diarrhea but
when tested also show
(certain) high
antibodies. Please
note also that some of
these antibodies found
in the gut can be
caused by other foods
as well. This is
why the gluten and
casein free diet is
best done in elimination
stages starting with
milk first (casein),
then followed with
wheat (gluten). Some
parents continue on
with eliminating other
foods which they feel
may be contributing to
autistic symptoms.
Remember that foods
eliminated must be
substituted with foods
of equal nutritional
value. It is
best to consult with a
nutritionist when
starting this diet to
properly insure your
child's adequate
nutritional intake.
Books on nutrition can
also be found at
libraries and
bookstores, and the
following websites
from USDA reference
are also helpful.) www.nal.usda.gov/fnic/etext/000020.html
and www.ag.uiuc.edu/~food-lab/nat/
Immunosciences
Lab, Inc.
"Leaky Gut"
explanation copied
from http://www.immuno-sci-lab.com/intestin.html
"Bad habits in
our society in general
have contributed to an
imbalance of
intestinal protective
factors in an alarming
percentage of the
population. These bad
habits include wide
spread consumption of
a diet high in refined
simple sugars and fat
and deficient in
nutritious, whole,
unprocessed foods and
fiber. This type of
diet could potentially
tip the intestinal
balance toward the
overgrowth of
unhealthful bacteria
and the proliferation
of yeast or
fungal organisms. It
is also associated
with less frequent
bowel movements and a
number of forms of
chronic intestinal
dysfunction.
These may contribute
to a breakdown or
deterioration in the
physical integrity of
the intestinal wall,
much like CFCs have
punctured the ozone
layer, creating holes
for ultraviolet
radiation to enter
through. Scientists
describe this state of
intestinal breakdown
as "leaky gut
syndrome" and
feel it may contribute
to intestinal
dysfunction. A bad
diet, deficient in
important nutrients
such as L-glutamine,
pantothenic acid,
zinc, folic acid,
vitamin B12, vitamin A
and others, may impair
the healing of
intestinal
deterioration. Another
bad habit is the over
use of broad
spectrum antibiotics.
Researchers have
acknowledged that
virtually every
antibiotic taken
orally causes
alterations in the
balance of the
bacteria in the
intestine. Even as
little as one course
of antibiotics may
deteriorate that rich,
protective coating of
microorganisms and
upset the balance
between healthful and
unhealthful bacteria,
reducing the
resistance to
intestinal and
systemic ill
health."
Teresa Binstock
(Researcher in
Developmental and
Behavioral
Neuroanatomy)
http://www.jorsm.com/~binstock/index.htm
Many of the newest
scientific studies
which continue today
have been researched
and compiled by Teresa
Binstock. Her overview
is excellent
containing theories
from different medical
and scientific
research. She has
written a valuable
overview which
contains some of this
material. Most
of these new studies
and theories are
pointing to a
neuro-immunological
etiology. A new
avenue of intervention
is making its' way to
the forefront which
constitutes the immune
system. Early
intervention is
extremely important.
Supplements
The
following information
is not medical advice
Consult your physician
and nutritionist for
guidance.
Kirkman's
www.kirkmanlabs.com
Kirkman’s
products are developed
from suggestions of
leading medical
doctors, researchers
and scientists
specializing in
autism. At the
following web
site you have access
to scientific articles
on each product
listed below.
You will be able to
understand each
product and whether
you are interested.
The products
were
formulated where
possible in powders,
liquids and chewable
tablets to make it
easier for you to give
products
to your children.
Super Nu-Thera®
The popular B-6 and
Magnesium
multi-vitamin
formulated by Dr.
Bernard Rimland of the
Autism
Research Center. Over
16 blended vitamins
and minerals.
Super NuThera P5P®
This is an advanced
formula with P5P
(activated B-6) and a
new easily absorbed
form
of
vitamin A and very
good tasting
Dimethyglycine (DMG)
Natural
"food"
supplement helpful for
autistic individuals.
Now in liquid.
Dimethyglycine (DMG)
with Folic Acid and
Vitamin B12
DMG can reduce the
amount of folic acid
in our
body. To
offset the
reduced folic acid
Kirkman Labs has
developed a DMG
product combined with
Folic
Acid and
vitamin B12.
Trimethyglycine (TMG)
DMG’s "big
brother" with
remarkable advantages
over DMG. Folic Acid
and B-12
Two
critical vitamins for
autistic children in a
convenient liquid
form.
scFOS A
remarkable product
that feeds the
"good
bacteria" and
reduces unwanted
yeast. Can multiple
your
"good
bacteria" five
times in only four
weeks.
Colostrum Gold®
Immune booster from
"natures first
food"…the fluid
mothers give their
newborn the
first
day. It can reduce
unwanted yeast in your
body.
Cranberry Extract
A new-patented
cranberry extract so
potent it is equal to
the medical value of
10 gallons
of
cranberry juice per
100 mg tablet.
Effected against
dozens of unfriendly
bacteria, viruses and
yeast.
MSM
An effective
detoxifying agent with
many health benefits.
Ojibwa
Tea www.ojibwatea.com
Ojibwa Tea of Life is
a four herb,
organic/ethically
wild-crafted blend.
When considering using
Ojibwa Tea of Life for
Autistic children,
please consider the
following information.
This tea is
traditionally used for
detoxification. This
may be just one of the
many reasons why the
tea has been shown to
be beneficial for some
of the conditions
associated with
Autism.
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